I have had my j-pouch for about 5 years (u.c.). Suddenly I'm having painful rectal spasms again, frequently and throughout the evening, which I had when I had u.c. Anyone else with the same experience? And what was done about it? Thanks.
Do you mean tenesmus, which is when you feel like you have to go but don't? I had that with UC. It can come from pouchitis, inflammation of your jpouch. Any other changes?
I always have to go. I take morphine to reduce gut activity, but active it remains. I recently had a sigmoidoscopy; no inflammation in pouch was seen. Waiting on biopsy results, but the doctor thought they'd be negative all around.
I have those and it turns out I have a stricture at the outlet of the pouch so I imagine it is spasming due to trying to get stuff out that is very small. While you are waiting for a solution I recommend something I never thought I would ever take and that is vaping marijuana. High THC. It stops the spasms for me while I wait for my surgical consult for the stricture (thanks for the delay covid). It's the only thing that works to stop them within minutes. Of course, I'm high as a kite and need to go to bed right away or I'll eat the entire contents of my kitchen.
Thanks, Jen. You know, I have always wanted to enjoy pot, as most everyone else seemingly does. Yet every time I've tried it, I just sit there, waiting for its effect to wear off. It just doesn't agree with me. But yours was a good idea.
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