J-Pouch Prolapse

I had a mesh put in 2 yrs ago after my pouch twisted 360° for the second time. I don't seem to create enough scar tissue to help hold things in place. The Dr purposely roughed me up inside when he did the surgery to cause more scar tissue so I was quite sore for a while. The good news is the mesh is doing it's job, never bothers me that I can tell. Good luck!

does putting the mesh in for a prolapse done through the anus or do they have to open you up?

@elk that's great to hear the mesh has been successful for you. I just had mesh put in last week and so far so good. 

My surgery to put the mesh in was laparoscopic with four incision sites on my belly.  

Yes, mine was laparoscopic too. I really doubt they'd do it rectally but that would be better answered by your surgeon. I'm not familiar with the procedure for a prolapse.

with the amount of surgeries I have had I doubt they could do it laproscopically if I needed it done. DrShen told me of fixing a prolapse through the anus, he must have been talking about the banding procedure that not many do, but has less than a 50% success rate

@Safado posted:

Getting surgery in a couple weeks to put some mesh on my j-pouch (Pouchopexy) to prevent J-Pouch prolapse. Anyone encountered either of these? Any advice about the surgery and/or condition?

thanks!

With a prolapse, does that mean the J-pouch anastomosis becomes loose causing the J-pouch to slide up and down and floppy???

Prolapses aren’t a failure of the anastomosis. There are two kinds of prolapses: mucosal prolapse and full-thickness prolapse. What they have in common is that *something* releases from its mooring, and can slide down toward (or through) the anal canal.

@Scott F posted:

Prolapses aren’t a failure of the anastomosis. There are two kinds of prolapses: mucosal prolapse and full-thickness prolapse. What they have in common is that *something* releases from its mooring, and can slide down toward (or through) the anal canal.

Oh my!!! That sounds incredibly painful!!! I could not imagine that happening!

@Former Member posted:

Oh my!!! That sounds incredibly painful!!! I could not imagine that happening!

Most people with prolapses seem to be more troubled by an inability to properly empty the pouch than by pain.

@Scott F posted:

Most people with prolapses seem to be more troubled by an inability to properly empty the pouch than by pain.

I see, that sounds annoying. I doubt laxatives could fix that problem. I wonder what causes that??? I know that constant straining to poop can be a potential factor and heavy lifting. Too bad everything has pros and cons. I even heard some women's vaginas prolapse too. Scary world. 

Safado, have you had your surgery? How did it go? Are things going better for you!

Aimee

I did! The surgey was great. My doc said my bowel was twisted up like a square knot and so he corrected the twist and then we sewed my j-pouch to my tail bone area with some mesh. The risk was that my bowel was sneaking behind my pouch and it was cutting off the blood supply to my bowel. The mesh should help prevent that disaster in the future. 

Recovery has been a little rough. I feel like it takes my bowels forever to wake up after surgery and a couple days I overate and got really full/bloated but taking it easy and finally back at work so it's going well. Thanks for asking! 

Good to hear. Glad things are improving.

Aimee

@Scott F posted:

Most people with prolapses seem to be more troubled by an inability to properly empty the pouch than by pain.

@Scott F - do you take Metamucil and or Imodium/Lomotil to help with stool consistency? Before I had this prolapse surgery a few weeks ago I had a good routine going and I knew how much Metamucil and Imodium my body could handle and I was fairly comfortable with my frequency and consistency.

Since my surgery though I'm struggling to find the right balance and quantity for these products. Just curious what works for you - and anyone else that's willing to weigh in... 

Thanks!

@Safado posted:

@Scott F - do you take Metamucil and or Imodium/Lomotil to help with stool consistency? Before I had this prolapse surgery a few weeks ago I had a good routine going and I knew how much Metamucil and Imodium my body could handle and I was fairly comfortable with my frequency and consistency.

Since my surgery though I'm struggling to find the right balance and quantity for these products. Just curious what works for you - and anyone else that's willing to weigh in... 

Thanks!

First, be patient with yourself. You’re recovering from surgery, and your body will keep changing/healing for a while.

I take one full dose of psyllium (per the package directions) before breakfast and dinner. It’s easy to experiment with the quantity to see what works best for you. I actually mix a half dose of Metamucil and a half dose of Konsyl, but the amount of psyllium is the same.

I take one Lomotil at bedtime to help me sleep through the night. I rarely take a bowel slower otherwise, unless I’ll be in a toilet-limited environment, like on a boat for a few hours.

Good luck!

@Scott F posted:

First, be patient with yourself. You’re recovering from surgery, and your body will keep changing/healing for a while.

I take one full dose of psyllium (per the package directions) before breakfast and dinner. It’s easy to experiment with the quantity to see what works best for you. I actually mix a half dose of Metamucil and a half dose of Konsyl, but the amount of psyllium is the same.

I take one Lomotil at bedtime to help me sleep through the night. I rarely take a bowel slower otherwise, unless I’ll be in a toilet-limited environment, like on a boat for a few hours.

Good luck!

Thank you Scott. I appreciate your help and the insight from your posts. I hadn't heard of Konsyl but looks like a good option for all-natural psyllium fiber. It's a good point that I need to be patient with my body healing so thanks for mentioning that. 

Safado, I know it’s even years and hope you’re repaired j-pouch still:doing great! Can I ask where you had your pouch fixed and did the repair hold? Thanks much. It seems  I have a prolapse pouch but haven’t yet discussed surgery details. Just confirmed diagnosis this week. Thanks for any info you can share.ljz