I had my takedown surgery 4 years ago and over last few months horrible leakage at night. I will wear a pad but sometimes it's not enough. It's not every night, but many. Tried taking Imodium before going to bed but doesn't seem to do much.
Any advice???
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Katie, any other symptoms? Pouchitis maybe? Any other new health issues?
When was the last time you had a scope? Night time leakage was the first sign for me that I was dealing with a very inflamed pouch. I really had no other symptoms. Make an appointment with your GI doc.
It sounds like pouchitis to me. If so, a 10-14 day course of Cipro or Flagyl should fix you right up.
Hi katie R. I had takedown surgery just over a year ago and had no nightime leakage for about the first 8 months or so. All of a sudden it seemed I was starting to have discharge overnight. Not every night but most nights. I remember I was sick with a cold and took nyquil before bed, well that was horrible, I made such a mess. I will never take nyquil again and highly suggest no one else take it with a pouch. I also have pain when I feel food moving through my small intestine and my belly makes girgling sounds. I had a pouchoscopy done in April and they found mild inflammation in the pouch so put me on a course of cipro then flagyl. It did not fix things and I ended up in emergency room 12 days ago with lots of stomach pain. They did a barium intrevenus cat scan and my entire small intestine is inflamed. I thought maybe it had something to do with being on amoxicilin for a root canal but who knows. So anyway now I just finished 10 day course of cipro and flagyl combined. It definitely slows everything down and I have bulkier stools maybe going 3 times a day. I cleaned up my diet and exercise everyday. I still have some leakage though. I have not tried imodium or lomatil yet. I hope there are alternatives to antibiotics. I would go for a scope though since it sounds like you might have pouchitis. The small intestine is suppose to absorb nutrients for your body not serve as a waste disposal holding tank. My body is fighting against these new bacteria. I thought things would get better after the first year but now they are getting worse. I do not want to go back to an illeostomy bag. Hang in there. Hope things get better and you get control of this.
It is either pouchitis which is treated easily or if you have that and upper GI pain it can be your gallbladder having alive atop it. Pouchitis is awful but comes with the territory. I didn't have it until 16 years after my takedown and pregnant so my advice is flagyl. It's a nasty tasting med but it works.
