Hello All,
I don't know if this is allowed or not but here goes ... I have a new boyfriend ;-) he is the best and has had a j pouch for 20 years. He is having horrible burn problems and has tried so many things .. we are sorted for a Dr appt with his Surgeon ( in NYC) tomorrow and i am hoping he doesnt have problems ( UC ) in the cuff. Are there others here that are the significant others to J pouchers? When i told him about ths forum he was like ..."wow" He is old school i guess. I have been trolling this site since he told me about his journey. Much Love to all you and what you have all been through.
Questions--
He eats small meals all day which I think is a mistake because it keeps him going all day and also i feel that makes more stomach acid because every time he eats that is the body's reaction. Am I wrong?
He eats a lot of sugar which i think can create yeast in the burn area.. he s putting on a lot of numbing creams because the pain is so bad but i don't think he is healing.
I am trying to be a supportive as i can without hovering... Any advice to a Mrs. J-Poucher ;-)
He also has other autoimmune problems... restless legs and lyme