J-pouch help..

DawnooMember

I am a 60 year old women and I had takedown surgery with J-pouch creation last November. I do not have any of the colon left in my body. They tell me my sphincter muscle is good.

I take imodium - 8 to 10 tablets a day as my stools are like water and many times explosive

I have a big problem with nighttime to a point where I am in the shower up to 3 times a night cleaning up/changing clothes and other runs to the bathroom in between. I need some true sleep ! This does not happen to this extent every night. I would say 10 percent of the time it isn't this extreme. I take imodium b4 bed as well and after every bowel movement at night.

Also some seepage during the day and the only way I know is the burning starts.

Also I seem to be gaining weight when my intake is not much.

My surgeon tells me to take as much imodium as I need. Should I be seeking advice from a gastrointestinal doc? I need other suggestions as this is not working..

8/8/1910:38 AM

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Still StandingMember

I believe its time to see a new GI. I had the same issues for many years until I found a good GI who put me on different medicines that helped me tremendously. You may find you have a case of pouchitis, which a round a antibiotics might help. (Leakage is my number one sign of pouchitis.)

Definitely look for a good GI. I remember too well how being sleep deprived isn't really living. I don't want you to have to continue to go through this if you can get some help.

Wishing you the best

8/8/1912:12 PM

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AndreitaMember

Why aren't you wearing diapers for the night so cleaning up isn't such a big thing for you? Better than washing clothes all the time. I don't have any advice and I hope you get better soon. I had my colectomy in November and reconnection just at the end of May.

8/8/1912:44 PM

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DawnooMember

Thanks ..believe I will find a new GI. I had that in my thought process..

8/8/191:52 PM

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AimcMember

Dawnoo, in the mean time, maybe take some fiber before or after each meal. I take 2 lomotil and 2 Imodium before bed. Try emptying your pouch before bed. You could also ear a small thickening snack before bed also, like a couple of peanut butter crackers or just a bit of peanut butter without crackers. I kind of sounds like you have pouchitis though. If you can't get into a GI fairly soon, maybe your surgeon could give you an antibiotic. Good luck with it all. Keep us informed.

Aimee

8/8/195:17 PM

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