I live in New York City and wonder if there are still any support groups I can go to discuss problems with J pouch with people who also would also like to find help also give help for people who might have problems or solutions.
I did go to a group years ago after my first surgery.
Thank you and God Bless
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Hi, Mikeey. Maybe the Gastroenterology Department of your local hospital can give you contacts for pouch groups, or ask to speak with their on-staff ostomy nurse for suggestions. Do you keep in touch with your surgeon? Maybe he/she might know of active groups that still meet. Or google j pouch support group meeting, NYC. Good luck.
Hello Winterberry- I will try all your suggestions and I so hope you are doing well.
Thank you and God Bless, Michael
Looked up CCFA.org and there seems to be a support group in the Beth Israel Phillips care center in Union Square. its not j-pouch specific but given broad IBD issues group, I'm sure j-pouch problems are frequent topics. you can find more info on their website for meeting times and address.
Thanks so much
