J-Pouch And Prostate Cancer

YOUR DAD'S PSA WAS 24??!?!?!!!! DANG!!!!!!

I am sooo happy your dad is okay!!!! THANK GOD!!!!!!!!!!!!!!!!!!!! So happy to hear that!!! Congratulations!!!!!!!!!!!!!! GIVE THANKS TO GOD!!!

Thank-you for posting this! I am sure it will help other men on here as well.

How old is your dad and how old was he when his PSA was 24???

THANKS A BUNCH! Yes, all glory to our Lord and Savior Jesus Christ!!!!

My father was 60 when he got the diagnosis and turned 61 a few months later!

@MikeEJ34 posted:

THANKS A BUNCH! Yes, all glory to our Lord and Savior Jesus Christ!!!!

My father was 60 when he got the diagnosis and turned 61 a few months later!

Thank-you for posting your dad's age, a lot of people say not to bother relying on PSA numbers after a certain age, but as you can see; Prostate cancer can show up at any age. I am soo happy your father is okay

Do you have a pouch too???

Absolutely!! I found a few encouraging posts on here when I was doing research! I’m sure someone will find the info and use it to save their loved one’s life in the future!

I don’t have a pouch, but I’m thankful my dad was able to get one to ease his colitis!

@MikeEJ34 posted:

Absolutely!! I found a few encouraging posts on here when I was doing research! I’m sure someone will find the info and use it to save their loved one’s life in the future!

I don’t have a pouch, but I’m thankful my dad was able to get one to ease his colitis!

That is pretty cool! I love that you are on here spreading helpful info! Is your dad on here too???

You must be your dad's caregiver huh?

I am happy you did not get Colitis; IBD is hereditary

I found a surgeon in CA. Dr. Gill out of USC Keck Medical Center one of the best in the world. I will be having my Robotic surgery on Wednesday December 16th. Praying for a successful surgery to get all the Cancer and a quick recovery. Amen!

@sahbumnim posted:

I found a surgeon in CA. Dr. Gill out of USC Keck Medical Center one of the best in the world. I will be having my Robotic surgery on Wednesday December 16th. Praying for a successful surgery to get all the Cancer and a quick recovery. Amen!

NICE!! I love it! I’ll certainly be praying for your procedure! I’m sure it will all go well!! 🙏🏾🙏🏾🙏🏾

Thank you God bless!

I know this thread is old but I thought I would add my two cents.

back around this time as I was interviewing surgeons, my yearly psa test jumped to 10.4.

every colorectal surgeon warned me to deal with prostate first if needed since radiation would be a big no no for the future jpouch and they stated it could be ruined permanently.

I had I a biopsy and no cancer was found so I have dodged that bullet for now.

but I do think what if? In the future.

Thankfully these days there are numerous doctors who have successfully completed prostatectomies in J-Pouch patients. Obviously there are still risks associated with  prostatectomies in J-Pouch patients, but your chances of a successful prostatectomy without J-Pouch violation/failure are better than what they were!

It’s still no easy decision and can be scary for people on this situation, but I believe everything will work out just fine! In Jesus’s name!

Lord willing you won’t have to have a prostatectomy though!

I just had an MRI and a lesion was found.  I guess the next step will be a biopsy but because I have active pouchitis I am concerned about how the biopsy should be performed.  Any thoughts?

I think piercing the small intestine/jpouch  with a biopsy  needle would be a no-no.

Also, I would not want the trus device being shoved up there, stretching the anal anastomosis and putting it at risk for tearing.

I would opt for a trans peri-anal biopsy, where they reach your prostate via the area btw the anus and testicles.

Is your Urologist aware of your new anatomy?  

Thanks for your input.  I'm kind of thinking along the same lines.  My urologist knows about the pouch.

Good luck @Ed55! Please keep us updated!

Will do!

Hey everyone!

Unfortunately my dad’s latest PSA is 1.05. He had a successful prostatectomy September 2020 and his subsequent PSA December 2020 was under .01.

One urologist is recommending hormone treatment which will stop the cancer growth, but according to him that’ll only last for a few years and the cancer will resume to grow.

Another urologist is asking us to get an MRI to see if they can locate the cancer (CT and PSMA Pet scans haven’t revealed where any cancer may be). They’re hoping they can locate the cancer and maybe freeze it or even radiate if in a “safe” location as to not impact his pouch.

Reaching out to see if anyone was or is currently in this predicament. If so we’d greatly appreciate y’all’s feedback and advice as to what y’all did and what we can even possibly recommend to the doctors.

Thanks in advance!

Mike

972-809-3640

MichaelEJohnson4@gmail.com

There is another forum out there, that I have visited, that will answer you questions much better than we can.  I am going to DM it to you.  I follow these threads because I run a high psa, and I want to stay on top on the current treatments out there.  Typically in these situations, there is salvation radiation and/or hormone therapy.  A top notch oncologist well versed in this scenario is a critical component. 

Much appreciate your response @New577! I look forward to your DM!

As many of us are aware, prostate cancer and/or other prostate health issues affect millions of men, world-wide.  Add into the 'mix', other health issues - including those of us with J pouches - then other very important things have to be taken into consideration.
I live in Spain and I was recently diagnosed with a low level of prostate cancer (Pca) Gleason 6 (3+3), following a fusion transperineal biopsy. My added 'bonus', is that the prostate has grown into the bladder.......I'm currently on Active Surveillance, but have been 'researching' in respect of how to move forward with this. And on a very positive note, there's an array of excellent information out there- both conventional and otherwise- to help those facing these issues....

This is Ed. Going back to my original post, I opted for the transperineal route for the biopsy.  However, even with this route, it is necessary to insert an instrument into the rectum/pouch to generate a real time image to merge with the MRI image.  So for me, there was still the issue of having to insert an instrument that could be larger than the diameter of my anastomosis.  I found a doctor at the Cleveland clinic (Dr. Z. Schwen) who was familiar with this issue and he was able to perform the biopsy without any damage to my anastomosis.  Unfortunately, the biopsy was positive for cancer.  After examining the options, I have chosen to have a prostatectomy.   

Hey Ed! Thanks for the update. Sorry to hear about the biopsy being positive for cancer. My father went through this process and successfully got a prostatectomy at the Mayo Clinic September 2020.

You will prevail! We look forward to future updates!

God bless,

Mike

972-809-3640

MichaelEJohnson4@gmail.com