J-Pouch and Polymialgia Rhumatica

smrdaz4lifeMember

Does anyone have experience with a J-pouch and Polymialgia Rhumatica? I am on high doses of Pred due to PMR and my doctor wants to get me off the Pred since I've been on it now for PMR for over a year. My body flairs anytime I go below 10 mgs. She wants to put me on Methotrexate but read that it can cause all kinds of GI issues. J-pouch is enough of an issue. Yes, better than a ostomy, in my case. I just don't want to go back to an ostomy due to Methotrexate. Any experience? Also, does anyone know if these conditions are realted in some way? Thank you very much.

10/16/154:39 PM

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Scott FMember

I'm not aware of any particular problem with MTX for J-pouchers. Lots of folks here use it. What is your concern?

10/16/156:34 PM

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Jan DollarModerator, RN, retired

Lots of folks on MTX with j-pouches. Inflammatory arthritis is pretty common. I have enteropathic arthritis. Not on MTX (yet), but it is on the table as a possibility in time.

Jan

10/16/158:40 PM

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TE MarieMember

I hate it when one specialist wants us to go off of a drug that is needed for a different health problem. My elderly father has faced this many times. I've had a few problems too. A friend of mine has polymyalgia R too. I took her to the ER with excruciating pain before her diagnosis and prednisone was prescribed. I can see your problem

10/17/1512:41 AM

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smrdaz4lifeMember

Thank all for their experience. Just one more drug I do not want to take. I have many side effects to medication. Just wanted jpouchers experience with methotrexate. I guess it is my only way to get off prednisone.

10/19/154:52 PM

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