Hi All, This is My First post , I have been Following in secret on here for about 3 years using tips and others struggles as motivation but now this is my last straw, Firstly Im not Depressed despite how i may sound i generally love the world, So here goes I Have Had A Horrific last 6 years Got Diagnosed colitus possible crohns age 21 started getting worse was and began effecting my work/life then i was taking all the tablets prednislone,pentasa,enymas you name it. I ended up on 17 a day !! But it felt managable for a yea... Then 6 colonoscopies and what seemed a thousand blood tests later im lacking iron now and again and inflammation markers are high, Have lacked iron since birth then but at 23 i had a big reaction to something i was taking and i recieved scars on both my face and body, they took pictures at the time of the holes and puss and sent them and skin samples around the globe for answers, no one had any answers not quickly enough anyway and they said they dont know what it was or the cause, I only new one thing i was burning from the inside i felt like i had extreme sun burn in my body so i believed it was my body saying something isnt right i promtly was advised to stop all medicine and take cipro which i did, After 4 months the face scars faded slowly thank god, My back didnt and has remained scarred but not bad just acne looking can live with that 2 inch holes though i Couldn't! Anyway got through that just, and the colitus began to get worse to the point i Couldn't work anymore,, i had a top office job and my desk become empty, So at 25 i was made redundant having worked there 6 years since college i was bummed! But understanding i Couldn't employ and pay a ghost, So i had a holiday tablet free just taking cipro, in the mean time my care had dropped away the gastroenterology prof retired and i was left unseen all year! Then 2 days back from hollidays and a great time! I collapsed out of the blue! no food or water would stay down and i was vomiting blood after 2 days trying to drink i woke up in hospital and the next thing i remember i had a total collectomy!! Bye bye colon! Hello Surgeon ! I had no say in the matter it had become toxic, I was crushed! I played sports, swam and was very proud of my look, now I have as carred back, A huge scar on my stomach top to bottom and had lost 3 stone and a colon! I also had 3 drains a catheter and a morphine button For pain! I Felt So Low That Day... I Think i cried for them to put it back lol but at 25 i felt young and nieve, I then the next day decided to embrace the bag and anything else!! I was up and out in 5 days , the surgeon said it was remarkable 5 days prior i had nearly died on the table! I began learning to walk again and also to use a stoma bag, I hated the look of the stoma at first and then i learned to love it, I then had a possible chance to have a J pouch, I was Very Happy as i believed my life would get back on track, so 2 surgeries later i had a j pouch it worked perfect then at 27 i was diagnosed spondolosis, chronic dehydration and fatigue, bile malsorbtion possible chrohns, and pouchitis within the last year they said i wont be able to work as its so sporiadic, My ex had enough and moved on and now at 29 this Year ive had 15 blockages and they found i have complicaions and adhesians up top of abdomen and a main one at the old stoma site! Surgery is last resort due to age illness and complicaions and im at a loss i have a handfull of friends and family who help but im at a loss the main reson for this post is im now on a liquid diet due to a narrowing over stoma site im doing this to prevent blockages does anyone have similar problems as the surgeon said theres a few unfortunate ones like you out there so im seeking you out! Any low residue easy foods drinks meds any info is welcome Than you
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