j pouch

tf posted:

I just got over c-diff, my immune must have been down, it took 2 rounds of antibiotics to clear.   The thing is I still am having rectal bleeding and some days its a lot with pain and pressure.  My dr. wants to do another scope.  I am so tired of these scopes.  They never find out anything.   It seems this happens when I'm very busy and sometimes go off my diet, to much physical work or stress.    I am beginning to think I have to live in a bubble and hardly eat.  It's wearing me out.  Thanks for listening.   

Getting to the end of your post where it said it was wearing you out. 

That was what made me decide to get rid of mine. 

It had wore me out.  I felt worse after my colon removal and j pouch creation.  

I could not do it anymore.  Seeing no improvement after two pus years I made the decision to have it removed and get the ileo. 

Not an easy decision to make either. 

Now it's not the right move for everyone it was definitely the right decision for me.  I suffer no more. 

Richard. 

Thanks for your input.  It's been 2 yrs 2 mo. since reversal.  I don't know if I'm ready or if I could get through another surgery at this point.  It's a big decision; one I was praying I didn't have to make.

TF, you really just have to gather your strength to get it figured out. C. Diff can be very hard to get rid of - if you still have it, a stool transplant (FMT) might get rid of it once and for all. Without a diagnosis right now there's no positive path to offset the misery of feeling poorly.