I had colectomy and the J pouch was done 2014. This is much better , when I had the bag outside I had problems with kidney stones and it is so much of maintenance, smell although it is a little more convenient because you do not feel the pain to use the bathroom! with the JPouch I use the bathroom more often especially if I ate food that has fiber, milk also even if it is almond milk causes me diarrhea no matter how it was consumed even coconut milk. I tried mixing it with food but it does not work. Apple juice does the same too . My doctor told me to have food forming like rice, peanut butter etc. I tried but it makes me constipated. then, I have to have apple juice or milk to let it out. If I have to go out I mean church , food shopping or to travel by air, I have to not eat at least 7-8 hours before so I do not have to use the bathroom. If I ate and I bent down, or carry a box or anything that has at least 2-lbs and up ,it triggers my bathroom usage. I have to sit in the bathroom for at least 20 minutes or so. and then come back after an hour, and then the pain that it causes...I have been analyzing my everyday routine and I realize that my day was almost all bathroom trips!
I am just doing a guessing game each day of what will make me feel better, and comfortable. I do not even know if my body is getting enough nutrients now... My work requires lots of standing but I can not do that now. No one will understand how it is only those who had the same issues.
Now, it is hard to spend overnight at others home because of this bathroom issues. Even eating out is not a good idea...
I got scared of what the other member was saying that she is living at the end of her rope. ..
If anyone had some suggestions please let me now. Thanks for your time