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I'm a few weeks out from my first surgery, which was a colectomy with an end ileostomy (I'll be having two more surgeries, one to create the j-pouch and loop ileostomy, then a takedown). I'm not a doctor so I'm probably over simplifying things, but it seems to me that logically one could expect the consistency and amount of output when the j-pouch is hooked up to be something sort of "in between" the output of ones loop and end ileostomy (since with the end ileo the part of the small bowel that's digesting your food is slightly longer than it would be with the j-pouch hooked up, whereas with the loop it's slightly shorter).

Anyway, if that's true, then would it follow that having problems with high output/liquidy output with the temp ileo is predictive of having similar problems with frequent BMs and urgency after takedown? Have any of you found this to be the case? Has this been discussed before?
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AFTER takedown, my surgeon gave me a written 4 week diet plan of foods that can thicken up the stool as well as metamucil and imodium, and after applying all of those different things through trial and error, I found out what worked. And by doing those things I was told to do, I was able to thicken up the stool to an applesauce-like consistency. It will likely never be much thicker than that, and I also think it would not be healthy for it to be too thick as you could then have pouch evacuation issues that could lead to irritation and inflammation.

Applying all of this will result in a thickening of the stool after takedown. Don't go by what your ileostomy output looks like as you will be doing different things after takedown.

BTW, I read parts of your blog and you are very funny/have a good sense of humor. Especially the part about the facial hair and pics of the same. BTW I am partially of Eastern European heritage as well.
Last edited by CTBarrister
I've only had the loop It was higher up and my output from that was nothing like my j-pouch output, explained above. You probably won't like the loop as well as the one you have now. I remember passing an entire Norco pain pill out of my stoma into the bag! The visiting nurse was there and she said, "no wonder you are is such pain". I cut all of my medications, vitamins and supplements up with a pill cutter after that.

Good Luck with your upcoming surgeries!
quote:
I've only had the loop It was higher up and my output from that was nothing like my j-pouch output, explained above. You probably won't like the loop as well as the one you have now.


Haha, I'm sure you're right... most of the time the output from my end ileo is better formed than anything that ever came out of me when I still had my colon! Sigh...
My output is not even remotely similar. With my ileostomy I had to measure my output because it was pure water and I couldn't stop passing out. It took me four days after takedown to enjoy a nice bowl of oatmeal and get completely constipated. Three years later, I still struggle with keeping my output runny enough to easily evacuate it.
Nobody can figure out why I have such a difficult time, although I was plagued with constipation my whole life until I got UC. The upside is that I have never had much buttburn! I have experienced a little bit of uncomfortableness, but nothing like other people have described. I also have never had a problem with incontinence. However, I pass a significant amount of blood on a daily basis, which has led to iron infusions to combat anemia.

So just remember that everyone is completely different, and you have no idea what your individual body is going to do.
This was really a concern of mine pre-takedown because my output with my ileostomy was like having a gusher! I had trouble staying hydrated. Fortunately, after takedown my output remained liquidy (I prefer it that way) but nowhere near what it was prior to takedown. I don't take anything to thicken output except once in awhile I eat oatmeal. That helps me if I should experience butt burn!

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