Is this a pouchitis symptom

Back and tailbone pain can be symptoms of pouchitis. Ask your do doctor for a prescription of cipro. The usual dose is 500 mg twice a day for about ten days. When I was prescribed flagyl my dose was higher than thAt and i do not cAre for the side effects of this drug. Your frequency is very high and has been for a long period of time. I think you need to find GI who hopefully has at least one other jpouch patient. You should not be struggling to this extreme with your symptoms.

It seems like folks tend to get some response within a few days if the antibiotic is going to be effective (others please chime in if you've seen a good response that didn't get started until a few weeks of therapy). I believe the reason for the extended duration is generally to try to get things to a stable state that will persist after the antibiotics are stopped, *not* to wait for a response in the first place. I don't respond to Flagyl for pouchitis, so when that has become clear I've switched to Cipro with good results. Haven't managed to get off the Cipro, unfortunately...

Like all things with our nutty systems, response time and efficacy varies person to person.

I responded extreemly well to Flagyl in the first 8 hours after undiagnosed raging pouchitis for a solid 13 years.

Even though flagyl doesn't work for everyone, or not as fast as it did for me, what you are describing sounds like it is not working for you. That is a long time to continue with the drug and symptoms.

It concerns me, too, that the GI hasn't confirmed with a scope. Some GI's will try to treat first rather than be evasive with a scope. However, with the length of time you have been suffering, it seems to me that a GI should take a look.

If you are concerned about pain with the scope given your severe symptoms, you can ask for sedation and the GI should not deny you that. If you want it and they say no, go somewhere else.

Many people do not need or want sedation but, for me, it was necessary bc I was in so much pain. My GI agreed 200% that it was the way to go in my case.

Last, I don't mean to knock your doctor but, based on all you've said, it really sounds like you might want to consider someone new. She doesn't seem experienced in this area and is leaving you to suffer long periods without a good plan to diagnose.

I hope you find relief very soon.

Also, I could be mistaken, but I don't recall any posts where someone was put on a three month course of flagyl. The norm seems to be about 10 days, though it may need to be restarted if symptoms are chronic.

My GI had me on it for 3 weeks and when I questioned it she didn't seem to think up to a month was unusual. Three months, though, with no relief, just seems odd to me.

I went back to my doctor she has changed me to cipro for one week then to go back onto flagyl which I have done. I have been back on flagyl for four days and can feel the symptoms coming back so went straight back onto cipro tonight hoping to clear it up. Not sure what else to do.
.

Sudie,

I, like others on this site, have been on chronic antibiotics. My case is a bit different though than yours in that most of my symptoms are in the anal canal (burning ,pain, anal stenosis, difficulty emptying completely). I do notice that if I miss my cipro, my frequency does go up a bit and I get more urges than when I am on it, but even off it, I am not going to the bathroom alot or having cramps and other typical symptoms. I have bled when not taking cipro.

With the antibiotics I am able to function. I have been taking cipro pretty much constantly for several months. I am not happy about it, but every time I try and stop within a couple of weeks I am in agony and it is just not worth it.

I know I should be swapping antibiotics, but I have tried augmentin and xifaxin and neither seem to really work. I hate flagyl and the taste etc.

I am not suggesting this is your case, but sometimes it just takes a longer time for the antibiotics to work before getting off them and if it does turn out to be a chronic issues for you, you may need to discuss rotating antibiotics for a longer period of time. Good luck.

You haven't been scoped, did I read that correctly? Well I was being scoped and my scopes were clean but my surgeon swore I had pouchitis and kept feeding me cipro and omniceff the two WORST offenders for C.Diff and that is what I had. For a whole year I was so sick and nobody tested me until I went to Cleveland clinic. I was confirmed positive through stool sample. So everyone make sure you get tested for c.dff especially if on antibiotics most cause the crap.

Hi vanessavy no my surgeon and GP doctor are only going by my systems that I have and unwellness, have been on flagyl one month was getting worse so then was put on cipro one week course, then back to flagyl two days later started getting sick again so was back on cipro still taking it for a few more days then back on flagyl. Any suggestions if I should be doing more? And what I C. Diff not heard of this thanks

I think you need a longer course of. cipro. I have been on it for several months at a time. Not an ideal situation but it tames all my pouchitis symptoms.