Instead of antibiotics for pouchitis has anyone had luck with anything else

I take probiotics to help stop pouchitis from reoccurring, otherwise it's antibiotics. Hopefully you can find something that works for you.

The industry standard is antibiotics first and biologics second. Probiotics are not viewed as a viable treatment for active pouchitis.

I think VSL #3 kept me off antibiotics for about a year. Some people do get benefit from an extremely low carbohydrate diet. Have you always had Cipro and Flagyl together? If so, only one of them is likely to be causing the problem, but it’s awfully hard to tell which one without trying one alone. I’d guess Cipro is slightly more likely to cause that side effect than Flagyl, but it’s not a listed side effect for either drug.

Well I’ve just started taking Blackmores Probiotics.  I’ve got Cipro on hand if I need to take it. I only take it if I need it. (two courses since Christmas). And I have Alprim for UTIs if i think I’m getting a bladder infection.  Other than that I try basically staying on a gluten free diet. I think everyone is different. Sometimes I think if you are really unwell you just have to take antibiotics. Maybe try and get fit in your own way and build up your immune system. 🌷🌷👍

Ps. I’ve just started drinking bottled water. I’m not sure about our water pipes whether they are producing rust. Anything is worth a try. So far things are going well. !!

Scott F posted:

I think VSL #3 kept me off antibiotics for about a year. Some people do get benefit from an extremely low carbohydrate diet. Have you always had Cipro and Flagyl together? If so, only one of them is likely to be causing the problem, but it’s awfully hard to tell which one without trying one alone. I’d guess Cipro is slightly more likely to cause that side effect than Flagyl, but it’s not a listed side effect for either drug.

I spoke with two different pharmacist and they both said it’s the flagyl that can cause heart palpitations. I asked my doctor and was told no it’s shouldn’t . But all I know was after two days tops on flagyl they start up . 
I am taking probiotics everyday and as of Monday morning I am eating only liquid and soft foods . Will try it for a week or so . 

Francesca posted:

Well I’ve just started taking Blackmores Probiotics.  I’ve got Cipro on hand if I need to take it. I only take it if I need it. (two courses since Christmas). And I have Alprim for UTIs if i think I’m getting a bladder infection.  Other than that I try basically staying on a gluten free diet. I think everyone is different. Sometimes I think if you are really unwell you just have to take antibiotics. Maybe try and get fit in your own way and build up your immune system. 🌷🌷👍

I Generally eat well but occasional I fall off the wagon and grab a chocolate bar I might try avoiding gluten for a bit see how that works out. 

Actually listen to your own body and generally your right concerning what you can and can’t have. There are a lot of medications to choose from on the market    Youre best to talk to your doctor about how medications effect you and go from there. Interestingly enough I’ve been having heart palpitations too since surgery so what does that say?? So as a result of that I take half a dose of Sotalol,  drink plenty of water and take it easy. 🤔

I’ve had pretty good success with the herbal remedy  Juglans Regia (English Walunt) gemmotherapy. Apparently it is antimicrobial and helps to restore and balance intestinal flora. It was prescribed by my alternative practitioner 8 months ago to treat 2 kinds of intestinal parasites that I had. It got rid of the parasites and at the same time I noticed it helped keep my pouchitis in check. I’ve had my pouch for 22 years and during the last year or so I was on antibiotics every few months. The juglans along with Visbiome and keeping my carbs to a minimum has kept me off them so far. I know every one is different and alternative remedies don’t work for everyone but it could be worth a try.