Inflectra

kjcoleMember

I am going to start inflectra this Friday and was wondering if there is anything I should know prior to my first infusion. I have not taken any prescription since j-pouch. Have been having lots of gas and loose stools so CT showed narrowing at segment near my pouch. I think I have had a few blockage that pass after a long and miserable night. Didn't get crohn's diagnosis. I currently take 2 anti diarrhea pills at night along with anti gas pills so I can get thru the night without accident or getting up to go to the restroom.

9/17/221:14 PM

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Sara MarieMember

This sounds like another auto-immune treatment. I'd be curious to hear about your experience. Did you have UC?

9/19/229:18 AM

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kjcoleMember

Sara,

I did have UC about 20 years ago and Mayo Clinic does say that about 20 years out you may find out you have Crohn's. They also say it isn't hereditary but my mom and her brother also have Crohn's plus other family members have UC and Crohn's. Just wanted to know if anyone has had any issues with inflectra. I usually don't experience side effects from meds. They wanted to start me o. Humira but insurance won't approve it. They wanted me to start back on prednisone and other traditional meds. Let me know if there is anything you would like to know I would be happy to help.

Thanks

9/19/2210:18 AM

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Sara MarieMember

I didn't know about the 20 year Crohn's thing. What's the logic behind that? Can you provide me with a link to that information? I googled but did not find. Thank you!

9/19/221:19 PM

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SadieM1210Member

@kjcole I started on Inflectra and did just fine. No side effects, no issues with the infusion. The pain you are talking about sounds like you might have a stricture. After I started my infusions that pain went away. I hope it works out for you.

10/16/221:27 AM

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