I have something going on. I can barely sit on my butt due to inflammation. Urgency is horrible and I don't potty much when I go. I have never had anything to this consistent magnitude and I am 17 or so years with my pouch. When I have had similar symptoms, I could associate to something I ate and it would "pass" after a day or so. I have been dealing with this for a month or so and it keeps getting worse. I am scheduled for a routine scope on March 25th. Today, I am wondering if I can continue this until the 25th or should continue this...like, am I causing more damage. At night, I get desperate sometimes and take 1 ibrophen and pepto bismol and that seems to chill me out but I know that is not good. No idea if it pouchitis, cuffitis or something else. I have huge urgency sometimes and have had a few accidents....I am so over it. No fever and no pain but seem extra "gassy". Any suggestions? Any advise? I am miserable.
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It could easily be pouchitis, though there are other possibilities. Have you tried calling your doctor’s office and telling them you’re in acute distress? At least you might be put on top of the cancellation list.
I may try that. I've never had anything to this degree in regard to it not going away. I'm grateful it's not a blockage bc that seems to be what I normally deal with. I mean my butt is so incredibly sore....can even sit without being uncomfortable.
I agree with chili123. Call your doctor. My ileostomy closure and reversal was only 11 months and I have had 3 bouts of pouchitis. They prescribed Flagyl and Cipro without seeing me based on my symptoms of going to bathroom greater than 18 times daily, sense of urgency like you, inflamation of butt due to constant diarrhea.