Hello, Leannern.

That is very difficult for you. I'm so sorry that you've been troubled for so long with so many BMs per day. Have you had an endoscopy (pouchoscopy) so your doctor can look inside and see if you have pouchitis or diagnose anything else that is causing so much difficulty?  Leakage can be the sign of pouchitis. If it is, your doctor might write you a two week prescription of Cipro or Flagyl. It can help you very quickly, sometimes by the 3rd pill.  

Sometimes taking a simple probiotic (available without prescription at health food stores or drug store) can help enormously by putting good bacteria back into your intestines. When I drank a probiotic weeks before my big surgery, I had excellent results, like a normal healthy colon. I still drink it 3 times a week. Have you tried taking probiotics for a couple of weeks?  What is your normal diet? Can you give an example?

Hi Winterberry,

I just had a bunch of testing done when I was admitted to the hospital, I also had a contrast ct scan.  I have not been scoped.  I was on probiotics as well as other vitamins but stopped prior to being hospitalized with abdominal pain.  I have been on cipro in the past, I could call my Dr and see if I can try it again.  I will reintroduce the probiotics and hope that helps.   What is the probiotic drink you mentioned?  Is it better than the capsules?

Thanks for responding so quickly, I'm exhausted and need to get this problem straightened out.

Leanne

Hi, Leanne. 

Did the cipro help you in the past?  Or see what your doctor thinks about flagyl if your problems turn out to be pouchitis related. A endoscopy / pouchoscopy will tell. They have to look inside, perhaps take samples from your pouch lining.

I drink a liquid probiotic called BIO K. It taste like yoghurt, the consistency is a bit thinner than yoghurt, and comes in flavours of blueberry, strawberry, mango, and plain. The mango flavour is rice based, not milk based so it can be for lactose intolerant customers. Each little jug (looks like a cute old fashioned milk jug) has 50 billion live cultures so it has to stay in the refridgerator. I buy it at the health food store's refridgerated section in a case of 12 for around $35. I drink half straight from the bottle, reseal the foil lid, and drink the rest another day. Bio K (not the similarly named Bio Kult, which I don't know anything about, I'm sorry) is suppose to survive the trip through the intestinal juices, according to their website. Don't give up. Schedule a pouchoscopy to determine exactly the problems, the cause, then move forward from there. Eat a plain, no sugar, nutritious, bulking diet to see if that gives your pouch a rest. 

Leanne, here is a link about Bio K. I'm sure it is available most everywhere. Whole Foods? 

https://www.biokplus.com/en_ca