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Ive had chronic pouchitis for 5 years and I have become immune to this list.
Cipro
Alinia
Flagyl
Augmentum
Clarithromycyn
Levoquin

I havent become immune to Doxycycline yet..anyone know of other antibiotics?

Also, has anyone had their Jpouch removed and just been hooked straight up? (to the rectum with now pouch) if so what is the name of this surgery and is it possible?
Thanks!

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Hi Jeane,
Yeah I live on xifaxan 60ml of Rowasa Enimas twice a day and 30 ml of Cort Eninma twice a day...
ive always ducked the 6mp because i hear bad side affects..pancreatitis and more..
Ive also heard of surgeons removing the diseased jpouch and constructing another one ..that is if my intestines are long enough to construct and reach.
napleseyes
Are you able to hold the enemas in with pouchitis? Does your regime keep the pouchitis under control? Have you tried pepto bismal? I get some relief with this to get breaks from Cipro. My pouchitis is pretty chronic also. I would be skeptical of creating another jpouch as I would bet you would still get pouchitis . Also small doses of 6 mp like 50 mg do help people with chronic pouchitis without the major concern of side effects but I understand your hesitation. I was reluctant to take it with UC but in retrospect wish I did. I may have held on to my colon if I tried it.
J
I take Lomotil..but is pepto bismol better to take?
yes I can ho;d the enimas in..its in remission right now but the problem is the Cort enima..I take 30ml twice a day but i may have gotten immune to 30ml..the pouch starts to throb in pain but if i take 35-40ml i feel fine..but my Dr wont up my dose of the Cort enima..wants me to have surgery instead..i wont do the ostomy.
napleseyes

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