NEED SOME INFO .I HAVE A ILEOSTOMY , HAD IT FOR 12 PLUS YEARS, ALWAYS HAVEING LEAKS, WHO ON HERE AS HAD AN ILEOSTOMY, THEN HAD A K POUCH DONE.NEED A GOOD DOCTOR TO DO ONE, AN SOME INFO ON DID IT HELP, HOW OFTEN DO YOU HAVE TO EMPT IT. ANY OTHER INFO THAT MAY HELP. THANKS
Other than a temporary ileostomy (which I hated with a passion) many years ago, I have not had an end ileostomy. I now have a BCIR, which is very similar to a k pouch in function. You can google k pouch and BCIR to get lots of information on these procedures.
Although there are risks of complications for any major surgery, these two procedures have a very high patient satisfaction rate and under 10% failure rate where the pouch must be removed. A very large percentage of these procedures are performed for people whose ileostomies do not provide satisfactory results and the quality of life desired. I typically empty my BCIR 4-5 times a day at my convenience, seldom at night (get a full 8 hours of sleep), and have no leakage of stool or gas. This procedure has enabled me to continue feeling good about using the men’s locker room at the Y and enjoying intimacy with no reservations. I can participate in any activity I want and have a well-balanced diet. Although I have had no personal experience with the Cleveland Clinic, I have read many posts that rate them highly on k pouch procedures. There are other surgeons listed in the K Pouch forum on this site, including 2 who do the BCIR procedure. Check with your insurance company to find out which surgeons they will cover, and best of luck on whatever you decide to do.
