It has been 11 years since I have had my Ileoanal anastomosis. No problems over the years, felt great. However, I began to have UC-like symptoms this past January. Upper, lower, and capsule endoscopy done. GI had no explanation as to why I was having pain/nausea again and why I was so anemic.
In May, I developed a rash on my legs that rheumatology is diagnosed as pyoderma gangrenosum, which is often associated with inflammatory conditions, such as ulcerative colitis and Crohn's disease. I also experienced horrible joint pain as well. Rheumatology is differentiating what type of arthritis I have, so we can develop a treatment plan.
Apparently, this is common in patients with IBD. When I had my colon removed, I thought I was free! Did not expect this at all, and in a way it is like being diagnosed all over again. The uncertainty and frustration of treatment.
How prevalent is this? Have many people on here developed arthritis as well? Just curious to see how many people have been affected.
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but every time I asked the consultant if they were linked they could never tell me for sure. My son has IBD and has also developed AS so there maybe is a link but don't think there has been any research to prove it. Luckily we have both responded very well to Humira which keeps the AS at bay. I know it's difficult but try to keep positive ~ good luck