I'm always saying how it amazes me that doctors neglect to share so much information that patients really need to know. Not just in the IBD world....It seems to be a pervasive problem.
Before the internet age, we were at a much greater disadvantage. Thankfully, we are able to educate ourselves better now and advocate for ourselves better.
Still, it seems to me patients should be offered more information up front by the medical world. Like a more comprehensive "this is what to expect welcome package" to the IBD/j pouch/ k pouch/etc world.
I need to get myself back on my feet first. But my area is severly lacking in patient educational information....I mean the type of information found on this forum. I'd love to some day put together a package of information that area doctors and hospitals can offer to patients that goes beyond what the medical field currently offers patients.
I am not sure what it would look like, but it sure as heck would include jpouch.org as a recommended resource!
I'm just think right now. Like I said, I have to get back on my feet first.
I'd love to hear any thoughts on this, in the meantime!
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