I saw Dr. Shen at Cleveland Clinic this week, and he uncovered a few issues with my pouch. Apparently I have paradoxical contractions, in addition to virtually no nerve activity whatsoever. This combination makes emptying my pouch very difficult unless I live on grapes to give myself diarrhea.
He wants me to try biofeedback to see if we can retrain the muscles to work correctly. Seriously- I didn't know there was a wrong way to poop! He wanted me to get the therapy in Cleveland, but there is no way I can stay for that length of time, or make that many trips. He said he would be happy with someone local only if they had experience working specifically with j-pouches.
So how do I find one of these therapists? Has anyone had experience? Does anyone know of one on the west coast? Help!
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