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Hi all. I don't post on this site very often, but I am very curious to know how people are after 1 year. I read a lot of posts where it is said it takes about a year to fully adjust. What is "fully adjusted"? I am nearly at this milestone, have never had pouchitus or cuffitus or any other major issue, yet I don't feel comfortable with how I feel at times. I find the process of going to the toilet is not smooth. I still find it difficult to expel those last bits, and get pain following a motion. I have had a Defacating proctogram and a pouchoscopy recently, with no abnormalities. Is this what the result should be. Do I just have to deal with what I have been dealt or should I expect better. If anyone has advice on what I should expect I'd really appreciate it.
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Well living with a j pouch will never be like living with a healthy colon agian because it's just so different now going to the bathroom. It's more like a new normal you settle into. I'm just about 2 years post takedown and I'm very happy with how I feel now. It's just great not to be sick anymore so I don't mind the little annoyances of the j pouch because to me they are so minor compared to what I had to deal with with UC.
Thanks Marianne, Kobi and Jen
Can you tell me whether any of you still get pain when going, or feel uncomfortable or a little sore afterwards. I remember when I had a colon, even with UC, after I went to the toilet I felt fine until I had to go again.
Also do you have periods when you are frequent for short periods e.g. 5-6 times in 3-4 hours.
at 3 months out, I am experiencing this too... pooping is not "smooth", discomfort and soreness afterwards, difficulty expelling the last poops and gas.

i also thought it gets better in 1 year.... maybe it takes even longer for some, or maybe those are just the "quirks" and our new normal of the pouch.

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