Skip to main content

Hi -

New to the group, you seem like a great, supportive, and informative bunch of people who have survived a lot! I apologize for not reading more (and probably finding the answer to my question), but was hoping for some info.

How many weeks before you got back some of your energy?

Were pain-free?

TIA for all your help!
Original Post

Replies sorted oldest to newest

I probably am not the best person to answer these questions, as I had a lot of complications (deep vein thrombosis, small bowel obstruction, wound infection, presacral abscess, and incisional hernia). But, here goes:

I got some of my energy back after about 6 weeks (I had a 1-step surgery). But, it took a full year to get back to my healthy baseline. I was very ill and weak by the time I had my surgery, so that was a factor.

I was pain free maybe two months post-op. I am talking about surgical pain. I still had crampy discomfort for perhaps another six months, while my pouch adapted.

Jan Smiler
I had no complications, but I was very sick for 2.5 years prior to surgery. It took about a year to recover from the fatigue, but I did all my regular activities in that year ( full time work, backpacking, participating in half marathon's, etc.). I napped every day for about a year.

The good news is that recovery, even with the fatigue, was not too difficult because I was no longer sick.

Sue Big Grin
From start to finish my surgery recovery was 4 months. I had a two step procedure. I started feeling like my old self again shortly after my takedown surgery. I had some complications after my first step so the months in between the surgeries were pretty rough for me. I had my takedown surgery on October 8th that year and by Halloween I was taking my kids out trick or treating like I never had surgery.
This is a tough one because we are all different with age, preexisting conditions other than UC, if you had it elective in better health or if the decision was made after a long bout of flare ups, laprascopic or open, or like Jan said if your surgery went as planned. I experienced multiple infecrions, toxic shock so bad I almost died, an open surgery which I elected laprascopic but due to the multiple infections had to be opened up, and 3 months of extreme anemia. My Takedown was March 23rd and I still don't feel normal and on long term disability. I'm hoping to get back to work Sept 23 with work arrangements and a reduced schedule. I'm blessed to have a job that is willing to work with me because when you hit Long Term Disability your job isn't guaranteed. I hope your work is understanding also it is important. My first surgery was Feb 13th so 7th months for me but I'm not 100%. Like I said though you're asking a question you will get multiple answer to that I doubt is going to help to much its all based on the things I've discussed. Good luck and hope you have a speedy recovery.
I agree with lew it isn't overnight but if you had a good surgeon each month you will see much improvement. My problem the first year was not trusting my pouch, like feeling safe when I was out of the house,I was scared I would be having a pooping accident like I did when I had the colitis flair. It never happened, thank goodness.

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×