How common: UC after j-pouch becomes crohns

My son got was diagnosed June 2012 with UC had his take down April 2013 - problems since then and a video capsule this week and is diagnosis has just changed to crohns. Biologics are being recommended. We don't know what yet. I will be interested to hear what people do once they learn it is crohns too.

There is a lady that I don't think posts here anymore that was diagnosed with crohns after her j-pouch surgery. She is keeping it under control with Humeria by giving herself a shot every other week.

I know there are other people that have had the same thing happen. Hopefully she and/or they will post.

I just had my colon removed in step 1 of 2 for j-pouch. When the pathology was done of my colon they found Crohn's. This was a huge disappointment to me because I had been prescreened for this durning a fairly recent colonoscopy.

I am curious how others have been treated. Do you wait for symptoms to start or do you start a maintenance program?

The number that I've usually seen thrown around is that 10% of UC cases end up re-diagnosed as Crohn's at some point after surgery.

freedom75, have you had the j-pouch construction already, or just a colectomy?

I got sick when I was 18, I kept being tested and my results always came back inconclusive, I was told b/c of the severity of my disease they suspected crohns. After a couple years a new test came out (I have no idea what it was other then it was blood work) and much to the surprise it came back ulcerative colitis. I had my jpouch surgery 9.5 years ago. In April I had a cat scan showing inflammation in my small intestine, I'm on a 2week course of flagyl and iron (i'm severely anemic ) and I'm having a scope of my pouch in a month. Drs are thinking crohns after all these years. I've thought I had colitis for 15 years.

Is it possible to have colitis and then develop crohns later? My drs were just so sure I didnt have crohns, my colon was a complete disaster, I almost died and several drs told me they had never seen such a severe case of UC, but my small intestine was always perfect.

19 years ago daughter was diagnosed with Crohns by a local Doctor - she went to well known hospital and she was diagnosed with UC - 2nd worse case they had seen - she ended up getting a ileostomy and then J-pouch - I have never heard Chrones mentioned again - they recently found cancer in a j-pouch fistula