hello all haven’t been here in awhile. I’ve been doing great bowel wise, no doible digits.. I use cottonelle baby wipes as it works best and is hypoallergenic. I’ve tried aveeno excema cream and aveeno baby moisuring wash for when I bath. My bottom is literally covered in bumps that may itch at times I try not to itch but sometimes can’t help it.. my family dr also prescribed me triacyclime steroid cream and it helps some but the steroids dry my inner thighs. My best solution as of now is the Boudreaux’s extra strength butt paste, the weaker one isn’t a Help. I also have cetaphil excema cream which is expensive and. A pretty good brand since it has no drugs in it mainly minerals maybe oatmeal idk. I get horrible but burn with blood on my cottonelle whiles. I take numerous hoses and bathe with the numerous exceeds creams!!! I don’t even wanna eat because I know what comes next . My dr said I could get refreshed to dermatologist it’s just so embarrassing and gross all the numbs and cuts ... SO has ANYONE found another paste that DOES NOT have steroid cream. I’m desperate and any help would be greatly appreciated as I’m going to CVS tonight . This is a struggle but god will prevail so fellow j pouchers can you help me out. I’ve also tried meta musil, bananas the whole shebang so pleaselmk what butt paste is your go too that is healthy 🤗 I also have freezing moment from my cramps but I take dicyclomine but as we all know it doesn’t work for everyone just a tip. Please respond with urgency!!!
as always ,
Keaton Cole
PS - I have a baby on the way , my mamaw had UC and wears the ostomy bag (bled her heart) I’m just so scared my child gets UC or Chrons..I could never forgive myself..