HORRIBLE BUTT BURN

Questran does bind bile salts. I don't know if it does a darn thing for butt burn, though. It couldn't hurt to try it, I guess, as long as you don't take any medications at around the same time.

 

Are you applying the barrier creams faithfully *after* every BM? I'd recommed plain old zinc oxide, in case you're sensitive to some of the extra ingredients in the others.

for me I use plain A n D ointment before n after going....also stay away from the horrible foods...

for me its fried eggs/ ice cream / bacon / nuts / sugary stuff

greasy fried food kill me. i can eat scrambled eggs but not fried...

keep area clean and dry...use a hand held spray in shower and change underwear alot...

had j-pouch for 8 years now....took me awhile to learn a lot...

Indy-Dave-Thanks so much

Strange-Thanks for the advice will look into the ilex paste.

Scott F- I keep the area incredibly clean, have some options I will definitely try.  Thank you

Hope all works out for you Mikeey.
  Keep us updated, especially if you discover a solution we've failed to mentioned.

Thanks strange- So far doing a bit better, with calmoseptine, a & d ointment, balmex and thayers unscented witch hazel with aloe vera, change several times a day and eat oatmeal that I think helps a bit with acid.Tried ilex once before, maybe used to much. You guys are great, thank you.

I'm pleased you like us.
  I briefly tried barrier creams just after takedown and nothing was as soothing or as effective as the ilex, although I too used far too much which initially put me off.
 
I first discovered ilex for use around the skin of my temporary Stoma; prior to ilex, I used all kind of potions, barrier creams n sprays, recommended by my Stoma Nurse and nothing worked.

ilex was recommend to me by a forum member from here.

Another trick to make ilex more user friendly and less sticky, once applied, wipe the area with a pure baby wipe, doing so kinda turns the ilex paste into a more manageable ointment and less sticky and gloopy.

I have had my J pouch for a little over 2 years and have suffered from butt burn almost constantly. I've tried a lot of products but the ones I found that have worked best for relieving the pain is good old diaper rash cream. My preferred brand is Desitin Rapid Relief. Another product I found helpful is Tucks whitchhazel cooling pads. In regards to trying to prevent butt burn from happening I cut out a lot of problems foods, refined sugars and gluten, and started juicing. For me this has made such a difference. I hope that you find what works for you and start feeling better. 

Kris 10- Thank you so much, I have and will continue to try many wonderful ideas that have been given to me, in the hope of eventually relieving my constant problem.

It is such a wonderful feeling that so many people have come forward in an effort to try and help me.  I thank you all from the bottom of my heart.

Michael

Strange- Again, thanks again.

Something I used before surgery and have continued with is a low pressure bidet.  They help a lot to get all the stool off your skin without excessive wiping which contributes to irritation.  A model that I purchased for about $45 was a Hyundai Bidet.  It fits on your toilet seat and easily connects to your water supply line.  I am spoiled by it. I hate to have to use a toilet without one.  Good luck!

Hi JKC- Thanks so much for your response.  Since the beginning of my surgery I must be close to a faucet, I use charmin the red one and wipe myself with very warm water after each bm, there are times when I am away  from home and not to close to a faucet, usually I take a large plastic cup and fill it with hot to warm water, I find this very soothing, but when things get really bad and I have 12 to 14 bms daily, nothing helps me,unfortunately. My life has not been easy for me, I have had 14 surgeries, six for j pouch reversal ,as I had blood clots, hence, returned to a bag for a year then had a few more j pouch surgeries, also stomach hernias, gall bladder removal etc. etc., at one time I  had a port in my arm I needed nutrition when I had the bag got  an infection got sepsis and nearly died in the hospital, all my vitals stopped and through some miracle from Saint Jude who I pray to daily, I survived, even the doctors could not believe it, they had told my partner to contact my family since I was not going to make it. Here I am so although things get so bad and I want to give up, I think of my small miracle.  I am so glad I found the j pouch group. they have helped me so much, thank you all for your wonderful support.

Good luck, I hope you find something that brings relief!

I take fiber religiously.  Also, food choices can make way worse.  It is def a roller coaster. I can eat some things some times and np and then other times....BAD NEWS!!

I have heard people who use Ilex also say they smear a thin coat of Vaseline over the Ilex in order to keep the area from being so sticky/goopy.

Yeah some users do apply Vaseline over the ilex paste, however, I believe the Vaseline is only necessary when too much ilex has been applied.

When I began using ilex to treat butt burn, I smeared it on like applying Sudocrem diaper rash cream; by doing so, although it relieved the pain and discomfort of the butt burn, I created a sticky, uncomfortable and gloopy mess.

That is, until I realised only a small pea size amount of ilex paste is required.

Although, this may depend on the severity of the skin damage.

Thanks very much Strange

Thanks CeeeeCeeee

Thanks Chili 123, guess we all have that problem