Hirschsprungs Disease

Anyone with a history of Hirschsprungs Disease and have a J Pouch??

6/21/188:21 PM

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Jan DollarModerator, RN, retired

I did a search and there have been no posts by anyone regarding Hirschsprungs since 2013. This was the only thread found. Hopefully someone with a knowledge base will come along for you.

https://www.j-pouch.org/topic/...ing-for-alternatives

Jan

6/22/185:13 PM

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Melinda KlarMember

I was born with Hirschsprung's and had my "Modified" Swenson Pull-Through at age 5. About 2 years post-procedure began struggling with constipation again which became progressively worse into young adulthood until finally diagnosed with total colonic inertia. (Kept all 24 Sitzmarks at 3 weeks!). There was suspicion that my first procedure left an aganglionic segment. It was recommended that I get rid of the entire colon so I had my J-pouch at age 36. Now age 60. Except for a few bouts with pouchitis early on and one SBO 7 years out - I have had a very good experience with my J pouch. Could understand why it's not for everyone though.

Would be happy to share stories/info with others.

Melinda

6/29/187:01 PM

❤️ 1

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