Hey guys. I survived 1st part of j-pouch revision surgery on May 18. Quick recap, I had s-pouch 1982 at 17 y/o and reconnect one year later. Worsening function to point of no return recently lead me to decision between permanent ileostomy bag or brand new j-pouch surgery. Even after 4 full laparotomies way back in 80's my amazing doc at UCSD was able to do procedure with robotic scoping, no laparatomy. Even got away without the dreaded N-G tube this round.
So here I am home doing well except for high output stoma like 2500 ml plus per 24 hrs (shouldn't be more than 1200ml I am told). Got super dehydrated but urgent care infusion rescued me last week. 3-4 L per day electrolyte drinks can't quite keep up with what I need. Really getting serious about what I am taking in now but appreciate any advice you may have to slow output? Also, how long before body adjusts on it's own with output? Will this get better on it's own with dietary adjustments is what I am after. Plan is take down surgery 3 months post 1st surgery putting me mid-August. Thanks so much in advance for any advice!
Sean