Skip to main content

I have some issues with my Mucous Fistula. There's so much output that i'm having to use the toilet twice a day to expel the mucous, on top of expelling it by emptying my pouch. Since my surgery is in three stages i still have some large intestine remaining, and i'm assuming the UC is responsible for this high output. I don't feel terribly bad; it's more of a minor convenience. My question is shall i ignore it or meet up with my surgeon? My worry is, even though it's a minor issue, this minor issue might result in something major.
Original Post

Replies sorted oldest to newest

I'd look at this overproduction of mucous as a positive occurrence. At least it will be after you are totally connected. You probably won't notice the mucous after takedown but it will help move the effluent smoothly out of you. Without it, you would feel "stuck". The same thing happened to me prior to takedown. It was easier for me to accept wearing a sanitary pad since I'm female. If I were male, I'd do it anyway!
Th problem is the mucous is coming from the remaining part of my colon. I forgot to mention, since most of the forum members are American, they're used to two stage surgeries; where the first surgery is a total colectomy . I've had a sub total colectomy, so i have two stomas, an ileostomy on my left, and a mucous fistula on my right which is for my colon.
It's normal. I had a three stage procedure as well, but didn't have the mucous fistula (the top of the sigmoid was just tacked inside my body), and I had a LOT of mucus output through my anus before the second surgery. My rectum and sigmoid were still flaring pretty badly so the mucus was sometimes a bit bloody and sometimes urgent. Removing the rest of the colon sometimes resolves all of the inflammation, but often it does not.

I also had low grade fevers on and off after step 1 because of the inflammation so I tried using Canasa (per my surgeon's instructions), but I never tolerated mesalamine and it made my urgency worse, so I just stuck it out until step 2. Everything turned out fine for me Smiler

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×