What you describe seem more like the biopsy results, since the doctor said your pouch looks healthy. All pouches have some level of inflammation evident on microscopic examination of biopsies. If there were granulomas present, that would have been an indication of Crohn’s. No granulomas means pretty much nothing, as it does not rule out Crohn’s.

Crohn’s is difficult to diagnose and even more difficult to rule out. Once you no longer have a colon it gets more complicated. But the the main thing is that it does not really matter. Whatever form of IBD you have, the treatment now for what comes up would be based on your signs and symptoms, as the treatment largely overlaps across the IBD spectrum. But, if pouch failure looms, then it becomes more important to know, because Crohn’s may doom a pouch redo or continent pouch.

Hope that helps.

Jan

I would ask the doctors any questions you have. Do not be afraid to ask your doctor any questions, especially if its going to help you

@Jan Dollar posted:

What you describe seem more like the biopsy results, since the doctor said your pouch looks healthy. All pouches have some level of inflammation evident on microscopic examination of biopsies. If there were granulomas present, that would have been an indication of Crohn’s. No granulomas means pretty much nothing, as it does not rule out Crohn’s.

Crohn’s is difficult to diagnose and even more difficult to rule out. Once you no longer have a colon it gets more complicated. But the the main thing is that it does not really matter. Whatever form of IBD you have, the treatment now for what comes up would be based on your signs and symptoms, as the treatment largely overlaps across the IBD spectrum. But, if pouch failure looms, then it becomes more important to know, because Crohn’s may doom a pouch redo or continent pouch.

Hope that helps.

Jan

Thanks for replying!! You were right, doctor called me today and said the inflammation that was present was essentially “normal” and didn’t indicate anything was wrong. The pouch looked good. So they have officially decided that my issue is all pelvic floor related. Very tight sphincter too. They want me to do either their biofeedback program or if I can’t do that, then pelvic floor pt close to where I live, plus self dilation once or twice a week.

@Former Member posted:

I would ask the doctors any questions you have. Do not be afraid to ask your doctor any questions, especially if its going to help you

Thanks for replying! I messaged the doctor on patient portal and he called me and answered all my questions 😊

@Kh1988 posted:

Thanks for replying! I messaged the doctor on patient portal and he called me and answered all my questions 😊

Your welcome dear