Help Need second Opinion

kcraMember

Hello All,

I have had a JPouch since 2010. I have been on antibiotics for chronic pouchitis for a long time. My GI doctor ( @ stanford) think that I should get rid of Pouch and have a permanent ileostomy since i have a crohns of the pouch. I consulted with dr. Bo shen at clevenland clinic. he thinks the issue is just mechanical and i most probably do not have crohns. We just had a brand new baby have another 4 year old at home. i want to feel better so that i can help my wife.

can anyone plese recommend me a GI or a surgeon for me to consult for a second opinion? I am in the san francisco bay area. I have already tried Dr. Terdiman and Dr. Verma at UCSF

9/7/148:52 PM

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BillVMember

The only doctor I can think of in California is Dr. Robert Beart in Los Angeles. He did my original J pouch at Mayo Clinic in 1983 and is very highly respected (but might be retired by now). If I were in your position, I would do everything possible to save your J pouch (even if it means traveling to the Cleveland Clinic), because once your @@@ is gone, it’s gone. If your J pouch cannot be saved, you may want to consider a continent ileostomy (K pouch or BCIR) as an alternative to an end ileostomy. Best of luck to you.
Bill

9/7/1411:09 PM

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desisn00psMember

I would also go with whatever Dr. Shen in Cleveland suggests. If the issue is mechanical, can you have it redone? I know Dr. Feza Remzi in Cleveland redoes pouches so it might be worth getting a consult for that rather than removing the pouch entirely.

9/7/1411:30 PM

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Jan DollarModerator, RN, retired

What do the docs at UCSF say?

Jan

9/12/141:26 AM

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AmstobarMember

I would imagine there are good surgeons in the Bay Area, but if you come up empty, I recommend Dr. Phillip Fleshner in Los Angeles through Cedars Sinai.

9/14/149:48 PM

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