I have FAP & had 2nd jpouch surgery in 2012. I have been doing great, very healthy. My surgeon was doing the upper GI's for me until recently when he referred me to a GI Doc. GI Doc immediately scheduled an upper endoscopy & ultrasound of my thyroid which was definitely evidenced based as FAP affects these areas. However, he also ordered CT of my abdomen & GI Small Bowel Series. Not sure as to why he ordered the last especially & he had really no good reason. Furthermore, on my CT that I just had done, they found "suspicious" mass on the out right wall of my rectum. Now the radiologist wants to biopsy that. When I suggested it could be scar tissue, the nurse I spoke to scheduling it basically laughed. I'm going to try to get in touch with my surgeon because I feel we're chasing zebra's which is costing a lot plus the fact I don't want to be exposed to a lot of radiation unless absolutely necessary. Anybody been through the same tests the GI Doc considers routine for an FAP patient who is healthy?
Thanks.
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