I understand that an occasional night time deposit is to be expected with a pouch. Over 10 years, I've gone for weeks sleeping through the night without a problem. then having just a few days in a row with soiled underpants. Recently, something has changed and it's every day or every other day. It's almost as though my poop sensor is broken at night. As much as I know that this comes with the territory, it's really demeaning, exhausting, and just not fun. Yes I sleep on a bed pad and put a pad in my underwear and I take 6 Imodium daily. It's probably not pouchitis as during the day things are pretty firm. So, I'm wondering if anyone else has experienced this and what they did about it. Thanks
Replies sorted oldest to newest
Has anything else changed in your life, such as your diet or any meds you might be taking? If anything makes a difference with how much sleep I get at night time or leakage, it's usually my diet.
I find that nighttime problems are the first sign of pouchitis that I notice. Once I'm paying attention I tend to realize things have slowly deteriorated during the day, too, but without the drama of a messy bed.
Yep, night time leakage is an early sign of pouchitis or SIBO for me. Not every time, but sometimes. The urgency and frequency creep up later.
Jan
Hi Jan, Hope all is well. I did suspect pouchitis last week, took extra Immodium and tried to avoid killing off all my bacteria buddies because they take such good care of me. Things seemed to resolve, even got almost too solid during the day. In any case I wish it were only some leakage. Diet has been suggested so I'm looking at that. No more Haagan Daz Dixie Cups for a while.
Cheers, Jeff
Good idea, ice cream is one of the last things I want to eat before bedtime, along with milk too and some other dairy products. I have had better luck with the lactose free goods though.
Well, no surprise, it was always simply a mild case of pouchitis. I fought it for 2 weeks, feeling not quite right, taking extra Immodium and setting an alarm to get up in the middle of the night to avoid accidents.
I'm very fortunate, in the past Cipro has worked almost immediately for me and it did the same this time. I made sure to cut way back on the Immodium to avoid overly formed stools. I'll continue on the Cipro for 7 days.
Thanks All
Yeah, for me it seems that as time goes by, my pouch is more sensitive to inflammatory bacteril overgrowth. I putz around trying to wish it away and thinking it was something I ate. In the end, I wind up on antibiotics. To avoid antibiotic "fatigue" I am alternating Cipro and Flagyl, and trying to stay off antibiotics as long as I can.
Hopefully, this is a more rare event for you.
Jan
Hi Jan, For me it's maybe 2 or 3 times a year at most and the Cipro calms everything down within a few hours, it's really crazy, my bacterium clearly run away when the see the Big C. It's SO tempting to just stop after 36 or 48 hours since everything returns to far better than normal overnight. I haven't tried Flagyl as yet simply because I haven't needed to and because I heard some nasty stories about metallic tastes and a rare reaction of flat out psychosis. Thanks as always, you rock the pouch world like no other. Jeff
try to stop eating after 6 davehdave.