I am asking because a few doctors told me that when you have one you often get more. That scared me.
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Yes.
Other things may and do pop up.
I just got rid of the major problem. My colon. Now I have skin problems associated with autoimmune disease.
It happens. Yes. It's a disease that doesn't go away just because you get rid of one part it affects. It's always there. And it may or may not manifest itself on another part of your body.
Google autoimmune disease. It's amazing how much is in there. Not that you will get any of it. But there is always a possibility and nothing to be scared of.
Richard.
I had pretty bad psoriasis before I was diagnosed with UC. When I started with Remicade it went away. My colon was removed 2 years ago and it seems like a small patch might be making an appearance.
Yes Ankylosing spondylitis
Primary sclerosis cholangitis
Pyoderma Gangrenodsom
I also had Erythema Nodosum once just before surgery, related to UC.
Diagnosed with UC in preschool and my parents were warned that I'd probably develop other autoimmune diseases. Psoriasis and either psoriatic arthritis or ankylosing spondylitis (the rheumatologist is indecisive) followed in my teens, and Hashimoto's as an adult. I also have ear issues the doctor thinks are autoimmune.
In other words.
We really do not want to have the "autoimmune disease".
Way too many things can and will pop up or go wrong. It's a disease I would wish on no one.
My grandson is showing signs of having it. I hope like hell he doesn't. It's a life long. Life altering disease.
Richard.
uh, I had hoped you all had said 'no' ��
I also had pyoderma and back when I had a stoma, they had to move it to the other side of my stomache because pyoderma 'ate' my skin right where the stoma were.
I bet there are more people but don't recognize that it's an autoimmune disease.
Sorry.
Ankylosing spondylitis
Iritis and uveitis
UColitis
Anything with a tis on the end is not good!
I know that Crohns was named after the Dr who identified it, but perhaps it should have really been called Ulcerative Ileitis!!
Mysticobra, I agree, and have previously made the comments to my wife and friends that I am tired of being diagnosed with things ending in "itis" but am thankful I have not been diagnosed with something ending in "oma"
That helps keep me grounded and buts things in a different perspective.
Yes I have Celiac Disease as well. GI Lottery win!!!
Ok - I'll be one to say no. I had UC for 13 years then had my colon out and j-pouch removed. I had no other autoimmune diseases before or after. I'm sure there are many others as well but they are probably less likely to be reading and replying to this thread.
I’m 28 and got Diagnosed with UC at 24. J pouch formation that same year since i was refractory to all meds. No other AI disease but have noticed i get folliculitis everywhere when i shave now since beginning stelara for cuffitis last February.
bowelsofhell posted:Diagnosed with UC in preschool and my parents were warned that I'd probably develop other autoimmune diseases. Psoriasis and either psoriatic arthritis or ankylosing spondylitis (the rheumatologist is indecisive) followed in my teens, and Hashimoto's as an adult. I also have ear issues the doctor thinks are autoimmune.
I got Spondylitis and Meniers and Arthritic problems. Autoimmune problems!!
Tanner posted:bowelsofhell posted:Diagnosed with UC in preschool and my parents were warned that I'd probably develop other autoimmune diseases. Psoriasis and either psoriatic arthritis or ankylosing spondylitis (the rheumatologist is indecisive) followed in my teens, and Hashimoto's as an adult. I also have ear issues the doctor thinks are autoimmune.
I got Spondylitis and Meniers and Arthritic problems. Autoimmune problems!!
I got the same three!!!
19 years after my colon was removed I developed Enteropathic Arthritis.
Hypothroidism, arthritis, dry eyes (not sure of the cause)
Interested to read Te Marie's comment about dry eyes. For the last 2 years I have very dry eyes at night. It is so bad that I physically cannot open them for a while when I wake up and I have to pull them open with my fingers which is painful. There is no outside gunk or anything. I had thought it was a reaction to taking Nortriptyline, but I still have the problem 6 months after stopping it. My eyes are totally OK during the day. Other thing is that I have chronic dehydration and it is worse overnight, so I wondered if that could be something to do with it.
Dear KIWIPOUCHER,
I went to an MD eye doctor and she did a simple test which showed I have dry eyes. I use prescription Restasis eye drops twice a day, morning and night, for it. I also get redness at times for no reason - looks like I am hung over red eyes. My husband notices this when it happens. I am constantly hydrating too. There is over the counter eye moisturizing drops too. She said not to use anything by visine.
First dx'd with acute UC in 2005, and my colon was removed only 3 weeks after my diagnosis. Although I have not been specifically diagnosed with another autoimmune disease, 5 years ago I developed angiodema (which manifests as swelling of the lips, inner cheeks, and eyes, as well as occasional outbreaks of hives - thankfully these symptoms are generally well controlled by antihistamines). I also suffer from moderate to severe dry eye. Like others here, my eyes can sometimes be painful to open in the morning, particularly the right one. Additionally, have had occasional retinal inflammation (the first time this coincided with my UC diagnosis), which at one point was suspected to be vasculitis although that was never a formal diagnosis. I am still being followed by a retina specialist and an allergist/immunologist. These symptoms are all markers of other autoimmune disorders, but I've had extensive work ups over the past 5 years and at this point the cause is idiopathic. That said, it would not shock me in the least to be officially diagnosed with another autoimmune disorder at some point in my life.
I also have dry eye (for which I use Restasis) and the eye doctor said he sees it all the time in patients with autoimmune diseases, sometimes as a complication of the illness(es) and sometimes due to our medications. My episcleritis, on the other hand, is an annoying issue he attributes specifically to the IBD. As long as iritis and uveitis stay away, I won't complain!
Tons of allergies...Foods (wine???!!!!), white surgical tape, drugs...never know what or when and once it starts I spend months in an allergic hot zone where even water can set me off on a chain reaction...eppi pen in my purse at all times.
The usual joint pain, problems and degeneration....
I figure that that is enough.
Sharon
Hello....you have to stop eating sugar. You must eat a plant based diet the rest are f your life.
read "how not to die" greger
"diet evolution" "plant paradox" steve gundry.
there are so many books it's diet that's killing us. It's not too late but stop eating sugar immediately
I’m pretty sure that no one has actually figured out how not to die. Plant-based diets work well for some people, and poorly for others. YMMV.
Start eating clean scott. Diet works you just have to be aggressive, no cheating ever the drug "sugar" has a hold on us. Stop now you'll be healthier
I was diagnosed with UC at 19 in 1980, had my jpouch surgery in 2000 and now am diagnosed with Chrons. Like one poster said, just glad I haven't been diagnosed with anything ending in "OMA".
I have follicular lymphoma which is auto immune.
Eat clean, NO SUGAR, earlier said than done but start there
I was just diagnosed as having asthma. Does that count?
Asthma which claims 3000 lives each year, may be preventable with a healthier diet. If your serious about getting well read!!!
how not to die "Gregor"
diet evolution "gundry"
wheat belly.....is another good one.
but we are killing ourselves with the fork
TC, I see a theme in all your posts.
TC, if eating well is all that needs to be done, why are you here?
Ulcerative colitis 13yrs, ostomy since 2006, now in kidney failure since 2010. all bc of autoimmune conditions. Then in 1-2017 watched an infomercial on steve gundrys book plant paradox that autoimmune conditions are bc of "leaky gut" we eat the poison (sugar) it makes same perforations in our intestines and the gut leaks, body mounts an immune response against itself, and now WE have an auto immune condition.
The light was turned on last year I'm fighting like hell everyday to stop the drug sugar that plagues me.
Read the books and stop eating sugar immediately!!!
TC, I’m not a defender of sugar, and in particular carbohydrates seem to be important contributors to pouchitis in *some* (though not all) people. Once eliminating sugar gets framed as a way “not to die,” though, it loses all credibility. The evidence for leaky gut is pretty weak so far, and the model may or may not pan out with further study. You may have indeed gotten great results for yourself by eliminating sugar, and some others might, too. Claiming (or implying) that everyone will get those same results, though, is simply inappropriate. Please dial it back, if you can.