This fluid that i still pass, its called distal fluid i believe? its not really an issue but there are somedays where i feel like i go to the bathroom alot just to get rid of whatever is there and its feeling. is there a way to lessen the fluid buildup? still have my j-pouch inside for a future takedown at some point
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I don't think there's much you can do about it. Just know it's normal.
I had it, too. Kind of annoying, but I don't know that much can be done about it. I believe it was more of an issue with my first ileostomy than the second one, though.
When I had the end ileo I was in the same boat. Sometimes it felt like I was constantly going, and there was so much fluid in there I thought there was no way it could be normal. But, it was. It's annoying and sometimes uncomfortable, but it ends when you have the pouch done.
Its odd some people dont experience this. When I had my end ileo with disconnected pouch this "stuff" kept getting worse and worse and I couldnt hold it in very well because it also was pretty thin. It forced me to have the pouch removed. Its basically diversion colitis and cant be treated easily. As was said it should disappear after you reconnect.
I am waiting for the second stage (2 stage) takedown. I get a good deal of mucous discharge etc etc at the moment. I thought it was because the end of the small intestine was just dangling there, but not so, it is connected to the as yet unused J-Pouch.
What I'd like to know is will this mucous discharge keep occurring when the loop ileostomy is removed and waste material is directed to the J-Pouch? I'd like to think not because it is inconvenient and happens quite frequently (ie. need to get rid of it before it ends up in my shorts), but don't know?
What I'd like to know is will this mucous discharge keep occurring when the loop ileostomy is removed and waste material is directed to the J-Pouch? I'd like to think not because it is inconvenient and happens quite frequently (ie. need to get rid of it before it ends up in my shorts), but don't know?
Hi Kev.
When I had my pouch op done over 30 years ago I would sometimes get mucus coming from my as yet not reconnected pouch when I had the loop ileostomy.
The most interesting one was when I ate a tomato and some of the seeds came out in the mucous and nothing else.It gave the stoma sisters something to talk about and to put in their file.
Pm me if you would like any more info as I live on the Central Coast of NSW.
Regards.
John.
When I had my pouch op done over 30 years ago I would sometimes get mucus coming from my as yet not reconnected pouch when I had the loop ileostomy.
The most interesting one was when I ate a tomato and some of the seeds came out in the mucous and nothing else.It gave the stoma sisters something to talk about and to put in their file.
Pm me if you would like any more info as I live on the Central Coast of NSW.
Regards.
John.
All of this pre-takedown mucus production won't be noticed once the J-pouch is connected and functioning. What it will do is make sure the passing of stool is smooth and easy! It's bothersome now but shouldn't even be noticed later. My surgeon told me to practice Kegels to stop the flow of the mucus prior to takedown and to strengthen the anal sphincters. Yeah, sure! I was a complete failure! That "stuff" was sooooooooo slippery.....for a reason!
Hi John,
Thanks for that, I'm led to believe the small intestine is connected so it's producing mucous below the loop ileostomoy.
30 Years, that's encouraging - I'll be 90 if I last that long and probably not much worried about pouch performance by then.
Central Coast, God's country. I'm in Canberra, came down from Newcastle - what a mistake that was - now kinda stuck, I have difficulty in finding any saving grace for Canberra other than slightly higher employment, but I digress.....
Hi CEM,
Thanks for the advice. Sometimes it's almost like a tap turned on, but I suppose that after takedown it will be all part of the mix (sic). I take your point about it's lubricating effect.
Thanks for that, I'm led to believe the small intestine is connected so it's producing mucous below the loop ileostomoy.
30 Years, that's encouraging - I'll be 90 if I last that long and probably not much worried about pouch performance by then.
Central Coast, God's country. I'm in Canberra, came down from Newcastle - what a mistake that was - now kinda stuck, I have difficulty in finding any saving grace for Canberra other than slightly higher employment, but I digress.....
Hi CEM,
Thanks for the advice. Sometimes it's almost like a tap turned on, but I suppose that after takedown it will be all part of the mix (sic). I take your point about it's lubricating effect.