@Former Member posted:

i know its pretty common

Omg yes!! Not inpatient just the ER. 4x last year, 2x this year already. As I get older it gets worse. 
I had heat exhaustion in 2017 which scared the shit out of me, since I was in a NYC subway station and passed out. I feel like I’m always on the edge of dehydration, one wrong move and I’m in the ER 

No, only once before j-pouch.

@ytcrockpot posted:

Omg yes!! Not inpatient just the ER. 4x last year, 2x this year already. As I get older it gets worse. 
I had heat exhaustion in 2017 which scared the shit out of me, since I was in a NYC subway station and passed out. I feel like I’m always on the edge of dehydration, one wrong move and I’m in the ER 

Oh my! I am glad you are okay. You might want to start drinking more water- before, during, and after meals. That helps me stay hydrated. I have 3 snacks a day and 3 meals a day- I drink water with every meal and snack. Try that method

Unfortunately us J-pouchers arent all the same with our dietS on how they eat & drink. Im 40yrs into this, it gets more difficult as you get older 

Never after j pouch, but twice with iliostomy.

@ytcrockpot posted:

Unfortunately us J-pouchers arent all the same with our dietS on how they eat & drink. Im 40yrs into this, it gets more difficult as you get older 

Do you drink lots of water throughout the day? And eat salty snacks? I put salt in my water sometimes. Do you have a hydration regimen??

@Former Member posted:

Do you drink lots of water throughout the day? And eat salty snacks? I put salt in my water sometimes. Do you have a hydration regimen??

Of course I do, we are all different with how we are able to stay hydrated. 

@ytcrockpot posted:

Of course I do, we are all different with how we are able to stay hydrated. 

Since you drink water throughout the day, I wonder why you get dehydrated to the point of going to the emergency room?? You must have a more sensitive system due to age. 

Once. 

The first time they released me from the hospital. 

But I had a temporary ileo at the time.  I wasn't home a day and boom!  Back in for two week hospital stay. 

That taught me quick to drink alot. All the time. 

No. It's not due from age. It due to not drinking enough water! 

By the time you notice you may be dehydrated it's too late. 

I drank six to seven bottles of water in an 8 hour shift at work. I worked outside in pretty hot weather. 

Now. I just down a bottle of water even if I don't think I need it. I do.  Just plain water.  

Passing out in a subway would not be fun. Ouch.

P. S. 

Thanks for the reminder..... Just drank a bottle. 

@Mysticobra posted:

Once. 

The first time they released me from the hospital. 

But I had a temporary ileo at the time.  I wasn't home a day and boom!  Back in for two week hospital stay. 

That taught me quick to drink alot. All the time. 

No. It's not due from age. It due to not drinking enough water! 

By the time you notice you may be dehydrated it's too late. 

I drank six to seven bottles of water in an 8 hour shift at work. I worked outside in pretty hot weather. 

Now. I just down a bottle of water even if I don't think I need it. I do.  Just plain water.  

Passing out in a subway would not be fun. Ouch.

P. S. 

Thanks for the reminder..... Just drank a bottle. 

LOL! You are soo funny! I love it hahaa! And yeah, I drink about 2 gallons a day. Always drink before your thirsty

I’ve only dehydrated when I had the temporary loop ileostomy; in fact I dehydrated twice per month, every month over 6 months; each occasion resulted in emergency admission into Hospital by ambulance for IV fluids 

I also suffered from renal failure, which luckily, was treated in time before lasting kidney damage occurred.

My potassium level was also dangerously low.

I dehydrated to such an extent, as apparently, due to the loop ileostomy, there wasn’t enough small intestine to absorb my fluid intake, despite how much I was drinking.

Since takedown, I’ve had no serious episodes of dehydration, although I do suffer from fatigue, which I believe is either a salt or magnesium deficiency, maybe both rather than actually dehydrating 

@Former Member posted:

I’ve only dehydrated when I had the temporary loop ileostomy; in fact I dehydrated twice per month, every month over 6 months; each occasion resulted in emergency admission into Hospital by ambulance for IV fluids 

I also suffered from renal failure, which luckily, was treated in time before lasting kidney damage occurred.

My potassium level was also dangerously low.

I dehydrated to such an extent, as apparently, due to the loop ileostomy, there wasn’t enough small intestine to absorb my fluid intake, despite how much I was drinking.

Since takedown, I’ve had no serious episodes of dehydration, although I do suffer from fatigue, which I believe is either a salt or magnesium deficiency, maybe both rather than actually dehydrating 

Potassium and magnesium are electrolytes- when they are low, you are dehydrated. Might want to try supplements

@Former Member posted:

Potassium and magnesium are electrolytes- when they are low, you are dehydrated. Might want to try supplements

 Not necessarily so.
During my bouts of dehydration; Doctors advised, I observe the colour of my urine as an indicator of dehydration, thus a pale colour ideal and to urinate no less than 3 times per day; however, a dark colour urine and urinating less than 3 times per day = dehydration.

However, I urinate often through-out the day and I drink fluids to such and extent that the colour of my urine is clear.

I also consume a home made electrolyte solution 3 times per week;, devised by the WHO and recommended by St Marks Hospital, London, which consist of Salt, Glucose and Bicarbonate Soda mixed with 1 litre of water with a fruit flavouring.

i also ensure to eat food that’ are high in potassium, such as bananas and baked potatoes, although not together.

@Former Member posted:

 Not necessarily so.
During my bouts of dehydration; Doctors advised, I observe the colour of my urine as an indicator of dehydration, thus a pale colour ideal and to urinate no less than 3 times per day; however, a dark colour urine and urinating less than 3 times per day = dehydration.

However, I urinate often through-out the day and I drink fluids to such and extent that the colour of my urine is clear.

I also consume a home made electrolyte solution 3 times per week;, devised by the WHO and recommended by St Marks Hospital, London, which consist of Salt, Glucose and Bicarbonate Soda mixed with 1 litre of water with a fruit flavouring.

i also ensure to eat food that’ are high in potassium, such as bananas and baked potatoes, although not together.

Sounds like a perfect regimen!

@Former Member posted:

Sounds like a perfect regimen!

Yet I still suffer from fatigue and episodes of my sleep pattern being disturbed; hence, sleeping when I should be awake or awake when I should be sleeping; otherwise life with a J pouch is absolutely wonderful.

@Former Member posted:

Yet I still suffer from fatigue and episodes of my sleep pattern being disturbed; hence, sleeping when I should be awake or awake when I should be sleeping; otherwise life with a J pouch is absolutely wonderful.

Most j-pouchers do. I get up overnight to poop too. Maybe try naps when you can. I am glad were okay though, our treatment plan is way better than active UC.