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hey ladies and maybe men,
I have had my J pouch for almost over a year now havent had a colon for over two years, I have mild pouchitis episodes every three to four months, but my concern is i have been hair loss problems i cant seem to conquer it. Was wondering if anyone with no colon has had this problem and if anyone can share advice. please help- Kimi
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Kim,
You are going to find a lot of posts on this exact same subject...lots of us have lived through the horrors of hair loss to near balding post op, post colon, post pouch etc...some say that it is the anesthesia, others the vit/mineral loss, others the surgical shock etc...I say that it is all and more mixed together which means that there is no 'one size fits all' solution but there are a few tricks...After a horrendous run of a dzn surgeries that included tons of meds and sickness I lost a lot of my hair...my dermatologis finally put me on H&S shampoo...worked wonderfully...but you need to do a little 3-5min massage during the shampoo all over your scalp (head down if possible like leaning over the tub)...brings the blood flow to the scalp along with the massage that stimulates the hair folicles and the zinc in the H&S stimulates growth...in about 6 months I saw serious regrowth and by the end of the yr my hair was growing in thicker...a good multivitamin helps to and healthy diet and exercise do wonders too.
I can't give you any better advices than a good shorty haircut to give you some bounce and a lot of patience until it grows in.
Sharon
I rarely used injectables other than iron infusions...by mouth (especially chewables) were just fine for me but if your numbers are really low then ask your doctor if it will help...also, I found that eating good quality dried fruits (dates, apricots, nuts, raisins etc) did a lot for my minerals (calcium, iron...) so you can try that too.
Sharon
i lost almost all my hair from the first surgery (total colectomy). i bought 2 fun wigs, foxy roxy = the short one and sexy lexy = the long one. cut all my hair off and now 6 months post op it is growing back thicker than before.
just in time for my j pouch surgery next week LOL.
i've been taking biotin 5000. great for hair health and regrowth.
Its so cool to hear that pretty much everyone that i have asked and the things i read on here that the hair does grow back and thicker. vary encouraging to me and relieves stress. started taking gummy multi vitamins and boitin 1000. I love that you named you wigs that is awesome!!! shows that even in the hardest times that you can still be spunky and sexy!
I think that the best thing about this site is the prevalent optimism of the members...even in the worst of times we find ways to laugh (at ourselves) or the situation.
I always said to my best friend when he asked that the situation may be 'grave' but it is not 'serious'. I knew that I would be in trouble if I ever considered it serious.
Sharon

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