So I went in for blockage pain, surgeon believes I keep getting blocked because of really bad cuffitis so she had me schedule for June 2nd for Pouch advancement. Luckily when I went in for pains earlier she opted to do it much sooner. Ended up having the pouch advancement and a musectomy on wed. She took 1 cm off my remaining 3 cm cuff. I just got my ng tube out today and catheter. I'm currently experiencing bad gas pain, trying to walk but that urgent feeling keeps me close. Waiting to actually pee as well. Haven't since catheter was taken out.
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Hope it helps your symptoms. Yes, 3cm is too long. I am a bit surprised she did not take more than a centimeter, since she was in there, leaving the more than adequate 1cm. But, perhaps you had a longer than usual cuff due to a reach issue? That is more common in men than women, due to the long, narrow pelvis.
Jan
Jan
Jeane, do you ever end up in the ER because of that?
It's worth asking the surgeon what led to the choice to retain 2 cm of rectal cuff. The hand-sewn procedure is extremely delicate, and I wouldn't want anyone to attempt it on me unless they had lots of experience with it. In any case, the mucosectomy removes the inner (mucosal) layer from what's left, which should prevent the inflammation that caused the problems. I hope you have a great outcome!
I thought a muscetomy meant handsewing and no rectal cuff was left with a muscetomy?
Jan - could you elaborate about men more often having a longer cuff? My son has a long cuff and no one has given an adequate explanation of why that happened.
Good Luck DGTRACY. I hope you have a smooth recovery and great outcome.
Jan - could you elaborate about men more often having a longer cuff? My son has a long cuff and no one has given an adequate explanation of why that happened.
Good Luck DGTRACY. I hope you have a smooth recovery and great outcome.
Mucosectomy simply means removing the mucosal layer, not sectioning the entire bowel wall. So, in this case, a 3cm cuff was reduced to 2cm and the mucosa was "stripped." Sounds simple, but far from it. Mucosectomy requires a lot of technical skill to avoid damaging the nerves at the dentate line (transition zone between the rectum and the anal canal). It is not like peeling a banana, but involves injecting fluid under the mucosa and carefully dissecting it away. If done completely, the mucosa will not grow back. But remnants left behind could potentially repopulate the cuff. Generally, if a mucosectomy is performed, a hand sewn anastomosis is required, because you need the intact rectum to use the stapler. I say generally because one member here once said she had a stapled anastomosis, but also had a mucosectomy. You also cannot have no retained cuff without a hand sewn anastomosis. But, having a hand sewn anastomosis does not mean you automatically had a mucosectomy. I am one who has rectal mucosa, but had a hand sewn anastomosis. Could be because it was about 20 years ago and the douple stapled technique was not the standard.
As to the "reach" issue, men tend to have deep and narrow pelvic outlets, and women tend to have a wide and shallow pelvic outlet. This is by design, since only women need to pass something the size of a baby's head.
The combination of a male type pelvis and a shorter mesentery may make a j-pouch impossible, or require technical "tricks" to lengthen the reach. These can include a longer cuff, vascular manipulation, or the use of an s-pouch instead of a j-pouch configuration.
I don't know if this situation was present for your son. It could be his age and just not enough room to work. I just do not know. Certainly his surgeon could tell you?
Hope this helps clarify.
Jan
As to the "reach" issue, men tend to have deep and narrow pelvic outlets, and women tend to have a wide and shallow pelvic outlet. This is by design, since only women need to pass something the size of a baby's head.
The combination of a male type pelvis and a shorter mesentery may make a j-pouch impossible, or require technical "tricks" to lengthen the reach. These can include a longer cuff, vascular manipulation, or the use of an s-pouch instead of a j-pouch configuration.
I don't know if this situation was present for your son. It could be his age and just not enough room to work. I just do not know. Certainly his surgeon could tell you?
Hope this helps clarify.
Jan