Grumbling Pouch!

Matt1701dMember

Hi all,
My white cells are up due to inflamation, meaning my pouchitis is 'grumbling'. I have been hospitalised a few times with Pouchitis, and have a telephone consultation this evening with my Doctor. I regularly take VSL3, the only symptom I have at present is getting up to use the loo a few times at night. Does anyone know of a long-term treatment for Pouchitis. I seem to remember being prescribed a steroid a few years back called Endcourt (i think!) Is this still available and does it work?
Any advice would be really appreciated.
Thanks, Matt

12/3/123:43 AM

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ElmerFuddMember

Typically doctors go the antibiotic route to treat pouchitis (cipro, flagyl, others). But all of our old friends would probably be helpful too: sulfasalazine (has helped me, and found one study supporting it's use - it is an anti-inflammatory and an antibiotic of sorts), prednisone, Entocort, etc. The hard thing is all of these are hard on the gut by themselves while treating inflammation so you have to find what works.

Steve

12/4/121:00 PM

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Matt1701dMember

Thanks Steve, i might query about Sulphasalazine, haven't had that sine the old Uc days. I seem to remember that it was quite innocuous...

12/5/126:21 AM

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clz81Member

I do manage my chronic pouchitis with antibiotics, however, I was on a prednisone pack for a week for an issue with my shoulder. The steroids did help a lot. With the number they did on my body when I was 14 (osteopenia), I shy away from them now. But I figure that they probably can't too too much harm once a year or so to calm down the inflammation. I haven't tried any of the UC meds. I don't have cuffitis at at all, but a lot of people with pouchitis also suffer from this, and get results from the UC meds.

12/5/122:06 PM

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