Haven't been on the site for awhile but I'm feeling a little desperate so I thought I might ask for some insight. I had a big GI Hemorrhage last week and spent 5 days in the ICU and needed 5 units of blood. The doc's did 2 upper GI's, 2 lower GI's, a single balloon enteroscopy (couldn't get through 100 cm of small intestine because of too much scarring) and a tagged red blood cell nuclear scan(?). They found a 1 cm ulcer in j-pouch during last scope on the anastomosis that they didn't see on the previous two so they don't think it was the source of the bleed, they also found one small vascular malformation in my small intestine that was cautorized, but doc felt was too small to cause hemorrhage. I've had several hemorrhages since my j-pouch was formed 9 years ago and many transfusions, this by far was the worst. I lost consciousness and went into shock, scared my poor husband to death. I'm soooo frustrated that I still don't know the cause of this. My problem is now.....I was released from the hospital on Friday (talked my way out), and I haven't been able to eat at all. My stomach cramps as soon as I put anything into it and if it's not liquid it will not go through. I'm still in a lot of abdominal pain and doubled over when I try to eat, even Boost or Ensure. I'm a little worried about getting dehydrated again because liquid diarrhea is all that's coming through. Does this sound normal for all of the scoping's my intestines have gone through? Or does it sound like the hemorrhage was possibly caused by an underlying obstruction I may have been having? BTW In hospital I passed pineapple I had eaten 3 days earlier (even after two bowel preps). I would really appreciate any help and suggestions on how to stay hydrated.
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