Hi, Has anyone out there gotten rid of their jpouch and gone back to a colostomy bag. I have had my jpouch for 25 years and am really getting tired of the daily rectal pain. That is the only problem I have and if I could get rid of that I would feel much better.
Loreen67
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My doctor asked me the same question, having a pouch for 34yrs with all my issues would I ever consider going back.
My reaction was shock, I have worked so hard to be "normal" even with all my issues and horrible meds that would be the thought for me.
Im sorry to hear that your pain is so bad. I do hope everything works out for you.
yvonne
Loren, do you know what's causing the pain? Is it being properly treated?
I did but had a lot more problems than just that.
But you do get tired of that part alone too.
PM me if you want anymore information.
I've posted a lot about it already. Nobody wants to hear it again.
Richard.
I'm with Richard. Jpouch gone, permanent end ileo. PM me, too, if you have any questions - I'd be happy to answer.
Before you call it quits on your j pouch, I recommend that you get a second opinion from a doctor who has lots of experience with problematic pouches. Cleveland Clinic has an excellent reputation for dealing with difficult j pouch problems. If the decision is to have your pouch removed, you may want to consider the k pouch or closely related BCIR, both of which avoid the need for an external bag and have a high rating of patient satisfaction. I had severe anal irritation coupled with high grade dysplasia and opted for a BCIR which worked out well for me and provided a very good quality of life. Please feel free to PM me with any questions you have.
Bill
Thank you for all the feedback much appreciated!!!
Loreen67
