I am getting pushback on trying to get my Flagyl/ Cipro meds refilled. I have been using them for the last 3 years (every other week or 7 days on then 7-10 days off them) and this has been effective thus far. I seem to have to beg my GI doctor / nurse to fulfill these monthly. Has anyone else ran into this? anyone else find this the best method to treat chronic pouchitis? I am seriously considering driving to Nogales to try and get a bulk order filled and avoid this nightmare.
background: 5 years ago after moving from FL to MN, I started to get flare ups of pouchitis (had not had any issues for almost 5 years of living in FL). Went to GI specialist and tried all different steroids/foams and nothing worked. Went to Mayo Clinic to get more tests/second opinion and they determined I have antibiotic dependent pouchitis and seemed to understand the Cipro/Flagyl combo was adequate direction until it stops working. They provided refills for a year or so during COVID then pressured me to find a local GI clinic to provide refills. this is where I am today after a primary physician stopped filling and am now at this specialist that seems to be lacking experience in J pouch related issues.