I read a couple of other posts from people on this topic here but they seemed to go back to 2013 so I thought I would start a new one here.
I moved from my home province across the country to a different province back in September for work. My GI in my home province made a referral to a GI about 4 hours from where I currently live. I live in a somewhat rural area and I guess the major GI group is there.
I have yet to see my new GI but I have been schedule for a Gastroctomy & Pouch-oscopy late next month. I have had regular 'pouchoscopies' (whatever the procedure is called when you have a j-pouch)! I have never had a Gastroctomy yet. They have given me all the preparation info. and they told me that I would need to be put under for the procedure. For years, I never bother getting sedated for my pouch-oscopies because I can handle the discomfort and I usually have to drive myself to and from. Aside from a little discomfort, I never have a problem.
With my upcoming procedures (I will have both done at the same appointment), it is a little more difficult. My 13yo daughter lives with me and there are just the two of us here. The appointment is on a Wednesday after so I will have to take her out of school, go to my appointment with her, spend a night in a hotel after the procedure, and then return the next day after I am legally able to drive again. I suppose I could leave her on her own overnight (she is old enough and capable), however, they initially said I would need another adult to take me from the hospital after I'm done. I don't know anyone there well enough to have that done. So, when I asked about my 13yo being the 'adult', they seemed willing to work with me on that. I also asked if I could avoid the anesthetic... They didn't completely dismiss the idea but mentioned that it might be difficult because I may have a 'gag reflex' etc that could be too much to overcome. Knowing me, I have a feeling I would have too much difficulty, unlike the procedure going up the other end of my body! My dad, a former Pediatrician, also told me that he has had 2 or 3 of them in the past and that I would need to be put under.
So, back to square one, should I take my daughter or leave her at home? I would prefer the latter so that she doesn't miss school and have to sit around for a day and a half. If the GI allows me to come alone then I may do that.
As far as the procedure, I am quite apprehensive. (A) being put under, and (B) just the thought of what they are going to do. I am also not sure why I am having one done because I have never had one until now. Isn't that strange give my history? What is the purpose of this Gastroctomy? Is it to check my stomach and small colon for cancer or other issues?
There are days / times when it seems that everything I eat just goes right through me. There are other days when I feel slightly more normal. Usually after I go through a bout when I have a large number of consecutive bowel movements, the next few hours or day, things tend to slow down. It could be that I am eating less and that mostly everything has passed through. But usually I think my body kind of adjusts and it slows the digestive process somewhat after that. It may also be the codeine I take daily that is working after being taken on a relatively empty stomach.
I used to weigh consistently around 162-166. The past year my weight is sometimes down as low as 144. This is around the same as after my Total Colectomy in the year 2000. I don't feel any worse for it. I have definitely lost muscle and strength but I am working to try and get it back. Maybe I'm better off at 150 or slightly lower? I wasn't really overweight before but I had a little extra fat and definitely greater muscle mass.
I am still taking Simponi but I haven't noticed any improvement so far...
Thoughts on some of these matters? Those are the Simponi boxes I've received since started a few months ago!