I'm going to try to post this again with a different header as i didn't receive any responses on my last one....
I've had 22 partial bowel obstructions the past year, lots of time in hospital. I finally saw a surgeon who might have answers and she thinks my J pouch is failing (I've had it 20 years with very little problem until the past 19 months). She thinks it isn't capable of pushing things through anymore, it sounds to me like it's kind of "dead" for lack of better words, and this is causing obstructions in my small bowel just above it from a lack of peristalsis. I had a gastrograffin test and the gastrograffin just stopped right at my pouch inlet for like 7 hours but there was nothing physically blocking it. I can't find any info. on this anywhere so was curious if anyone else has this? She suggested I try emptying my j pouch from the bottom end with a catheter and I know some on here do that-did it help with emptying/pain? Would enemas help or make it worse and just trap liquid in my malfunctioning pouch?
I'm going for a defecography in 2 weeks, and she said if the catheter trick doesn't work I'll need my J pouch taken out and have to have a permanent ileostomy, big surgeries..... Please help! Thanks.