Calmo
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C
So I went into the ER on Tuesday. I was back at work part time and all of a sudden got extreme cramping that didn't go away. The pain shot through my stomach and my back. I couldn't even move from my car. My coworker came down and drove me to the hospital. I was in the ER and immediately got an X-ray done which showed my intestines being huge again.

They admitted me right away. This time I got my own room. Yay. It's Saturday and I'm still here. They gave me a picc line on Thursday and my surgeon performed a pouchoscopy. The results came back normal. He said everything looked great and there were no kinks and problems at the connection site. He thinks it's just a functional problem. He put me on reglin to see if that will help gas move through the intestine better. I've been passing gas a little better but nothing drastic. So they have me on TPN through the
Picc line to help me maintain my low weight and keep my nutrition up.

I'm scared to go home and have this happens again. This is already the second time in about 2-3 weeks. I'm praying that this is it and it'll go away. As for now I should go home tomorrow. Surgeon wants to see how I do with solids for one more day. Hope it all works out!

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C chalMember
Don't want to give you something else to worry about but; if your dr. puts you on reglin longterm, please do some research and have a talk with him. I think in most cases the benefits outweigh the risks with this drug, but not always. You will be able to find this info very easily if you do a google search and I think the risks are mostly for longterm use. Just a FYI.
C
Jan DollarJan DollarModerator, RN, retired
Yes, for the short term, Reglan should be fine. But long term, not so much. My step mom was on Reglan for gastric and gut dysmotility for more than a decade. She subsequently developed Parkinsonian-like symptoms. I was the one who spotted them and urged her to follow up. Her neurologist immediately suspected the Reglan and discontinued it. Her symptoms improved a little, but did not really resolve. What we don't know is whether or not the drug actually caused this or just revealed an innate tendency. According to the neurologist, the people who get this side effect from Reglan may be destined to develop Parkinson's eventually anyway.

My step-mom was in her late 70s when the symptoms started, so she was in a risk group anyway. But, still, food for thought and something to keep in mind.

There is an FDA black box warning now, advising against using longer than 3 months.

http://www.fda.gov/Safety/MedW...mation/ucm170934.htm

Jan Smiler
Jan Dollar
Last edited by Jan Dollar
Jan DollarJan DollarModerator, RN, retired
Yeah, sometimes you just have to do what is necessary. At least you have some wiggle room there to take for some time before considering alternatives. The bad news is that there really is nothing much to aid in motility. The other drug, Propulsid, was pulled from the market due to dangerous cardiac arrhythmias. Same story with Zelnorm.

Some doctors prescribe erythromycin as a prokinetic agent.

Jan Smiler
Jan Dollar

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