Frequent hospitalizations

It's most likely adhesions that are tormenting you, I think. Any abdominal surgery will tend to create adhesions, and sometimes their location creates trouble. When it's as big an issue as you describe it may be worth getting them treated surgically. The surgery to cut them is a last resort because it can create new adhesions. The irony isn't very amusing. Some folks here have had great success with that procedure, though.

I agree with Scott. When you see your surgeon talk about how much these recurrent episodes impact your life and ability to parent. Either he or a general surgeon can do adhesion lysis surgery. Your surgeon may want to at least be present (or available) in case  complications come up. Most docs are pretty hesitant to do this surgery, so if you are not clear that you are not OK with the status quo, they assume you are OK with it.

Jan

There's nothing faux about a blockage caused by twisted bowel.

Why does your surgeon think it's caused by incomplete emptying? Are all of the blockages at the pouch? I'd also wonder about a stricture if so. What has your surgeon suggested you do?

Incomplete emptying can be exacerbated by too thick a stool consistency. Are you producing pudding or bricks? Are you on any medications that could contribute to this (e.g. opiates or Imodium)? Are you drinking enough water?

Incomplete emptying would be consistent with constipation type symptoms, which slowly develop. Obstructions, even partial, are more abrupt, with the type of pain you describe and dilated loops of bowel. I imagine your surgeon would like to think it is an emptying issue and it is the right thing to do to rule it out. But your abdominal x-arays don't lie. Adhesions would not show up, but their effect does.

Jan

Fir 10 years I lived with the same situation. It was a nightmare. Constant blockages. It finally got to a point real bad, I could not eat, so I had adhesion removal surgery and only in 5 years had to go to the hospital twice.