fistulas

My understanding is that fistulas do not usually heal on their own. I have one that has formed at my navel and am currently waiting for surgery to be scheduled at Cleveland Clinic. A CT scan helped to locate it. 

I certainly understand your concern and waiting until the end of January for an appointment is not helpful. Do you have a gynecologist or gastroenterologist that you could see?

Thank you, catinthehat.  Yes, my next stop will be a gynecologist to see if she could spot something.   I'm looking into natural anti-inflammatories to try and get the inflammation under control since it's the pouchitis that caused the fistulas.  I may need to take a trip to the Mayo Clinic (where my first surgeon is) to get a thorough work up.  I adore my NY surgeon, but I adore the facilities at the Mayo.  They provided me with care that could not be compared to the tri-state area.  

Thank God that I don't usually leak during the day; it's usually in the wee hours of the morning that it comes out.  I am not woken up by the feeling that I have to go--I wake up from the sensation of it coming out.

The other night I put a tampon in to see if I could prevent leakage, and interestingly enough, I still leaked, and the tampon was clean so maybe it's right at the entrance of the vagina.  I have no idea at this point.  It's like I need to hire a forensic scientist at this point to figure this one out...  It's very depressing.  I feel like such a freak.