Hi! I have had a j pouch for 30 years! Lucky to have had the Great surgeon Dr Victor Fazio! Only problem I have had is a rectal vaginal fistula that was attempted to be repaired at CC about 7 years ago without any success.
Does anyone know if there have been any advances in fistula repair?
Thanks! Betsy
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unfortunately not, fistulas are tough
Hi Betsy, I am considering a surgical repair (vaginally) and was told due to IBD (my J-pouch is 16 years old) there is only a 60% chance of success. Did your symptoms worsen after the failed surgery? I'm handling my RVF but am concerned that it will become more problematic as I age. Of course, I really don't want to make things worse. Any advice is appreciated. Thank you.
Hi Betsy, I had a fistula repair after 18 months with a seton and it was successful. My surgeon did a LIFT (Ligation of intersphincteric fistual tract) about ten years ago and ....knock on wood...it hasn't come back!!!
