I have sent a message to my doctor already but it takes her a few days to reply.
I think I've known for a while something big was about to go down. My posts here have become increasingly panicked because I honestly just don't feel well and I haven't for a while. I have a sinus tract off my pouch which was likely there since it was placed but was only discovered 4 years ago. I get pain etc. Sometimes I get pouchitis along with it and sometimes not.
This time I had it all, the pouchitis symptoms plus the sinus tract symptoms and now after being on cipro and flagyl 2x a day for the last 2 weeks I still feel sick. I got better briefly but then the chills and fatigue (SO MUCH FATIGUE) came back. Low appetite, can't tell if it's really because I'm not hungry or just afraid to eat because I don't know what the triggers are. My butt feels...weird...just kind of lightly store like something's wrong, queasy, the sickly awful way I used to feel when I was having a UC flare and I would just go from the bed to the bathroom and back for days. This feeling is unforgettable. I may have lost a few pounds this week. I could sleep and sleep and sleep. I feel super weak.
I owe so much money in hospital bills for going to the ER to figure out what's wrong with me and all these years nobody has been able to find anything except the sinus.
Am I dying? Is this what leukemia or lymphoma feels like? Am I about to get some bad news? I don't have bloody stools (yet) but it does feel sore to poop.
It's such a nightmare. My baby is 5 months old. We adopted her in good faith I'd be alive to raise her. I am so scared.
